Here I am again

[BLM]

Hey everyone!! Im back....so my deal again: been sick with severe stomach pain on and off for 15 years and been called a hypochondriac all my life. Nobody could ever figure out what was wrong with me. Had my appendix out at 18 and was ok or a year. Still delt with pain, but not as bad as it had been. A year later I ended up in the hospital with terrible pain, diahrea and vomiting. Stayed for a few days and ended up with Mesenteric Adinitis diagnosis. Took antibiotics and pain meds. Was good for another year....same story all over again....and again and again. Here I am 30 years old with a three year old and 10 month old. Started getting really sick in Janurary...high fever, pain, constipation/diahrea, lethargy. Went to hospital and admitted for Colitis in Feb. Stayed over a week and got sent home. Back to hospital in March with same crap, this time Mesenteric Adinitis....again?!? Stayed for over a week again, lots of tests and meds. Was told I had CD...and put on 4000mg of Pentasa and 9mg of Entocort. Have had ups and downs but generally got better. Come to find out...no real evidance of CD, so now they say presumed Crohns. Last month, I had a medication interaction that caused seizures. So in the hospital again!! Taken off EVERYTHING!! Been doing ok...well going down the same road slowly but surely. Starting to feel like Crap again...more diahrea, fatigue and intermittent pain. I have an appointment with new GI on Friday for second oppinion. Laying in bed tonight, Im starting to fee pretty crappy. My tum hurts and my diahrea is picking up. So what do I do?? I CANT go to the hospital again...Im fearing this may be my path again. Im so frustrated, and dont even want to mention it to my hubby, as he is tired of it too. My children need me here, and when Im in the hospital, life goes to crap for everyone. Any suggestion?? Im feeling down and dont know what to do at this point. Thanks for listening:ywow:

 

[dustydshook]

Oh boy does this sound familiar. I had presummed crohns for two yrs before they did a resection in may of this yr. and got a def. diagnosis. this is not uncommon since it is hard to diagnose. I would like to say that the hospital stays get easier and less frequent however they haven't in my case. 13 stays in 2008 13 stays in 2009 and 25 stays so far this yr. I have started taking myself to the hospital so my hubby can stay home with the kids and try to keep every thing at the house as normal as possible for them. I also try to wait untill they have gone to bed. Fortunatley the hospital is less than two miles from my house and they usually get me in and out in less than 12 hrs. The pain meds can give you the relief to get through your day. You need to have a very very very good support system a trusted family member or close friend that your kids are close to to have around in your absence. It will take a lot of adjusting on everyones part and after three yrs my daughter still has a hard time with it. But my husband (after truely realizing how sick I was) has become my gaurdian angel. Life will be in turmoil for a while but you have to have the adjustment period to try and figure out the best system for your family. And we are always here for you for any advice or just to listen to you vent. Hope all works out well for you.

 

[Dexky]

Hi Bev, I remember you!! I'm glad you came back though I hate the reason. I just google mesenteric adenitis. The symptoms certainly are indicative of IBD as well as appencicitis!!! I wonder did they remove your appendix unnecessarily? I hope this new GI will give you a clear dx and no more of this now she has it and now she doesn't. How do you treat that? Good luck Bev!!

 

[DustyKat]

Hey Bev,

I really hope and pray for you that the new GI can get this sorted for you. It just seems too coincidental to me that the mesenteric lymph nodes are repeatedly inflamed and I just wouldn't be surprised to see Ileal Crohns involvement. Good luck with the new guy and keep us posted.

All the best,
Dusty

 

[Astra]

Hiya Bev

glad you came back, not the circumstances tho!
I hope you get some answers off the new guy, you can't go on like this for another 15 years!
wishing you good luck, persist and insist!
xxxxx