Hello fellow Chronies! i have been stocking this forum for about a month. i feel i know many of you now. here is my story, bare with me i type on my i pad and refuse to capitalize, as i have auto correct off. i am 35, female, married 10 years, 3 miracle babies, who are 13, 10, 7. i live in US.
when i was young, very young i refused to eat meat, and drink milk. bio mom never argued. as a child my tummy always hurt. step mom insisted i was a hypochondriac. very seldom taken to doctor. everyday i walked home from school in pain. i lived with it, it was in my head.
when i was 14 the pain was so bad i could not stand up strait. mom (step) had to take me to doctor. that doctor said i needed a specialist. specialist poked my tummy one time, and sent me strait to xray. xray insisted i must be pregnant, i was humuliated, trying to explain to my dad i was a vergin and there was no way. they could see something but did not know what. so docs wanted to cut me open and put camera in. so off to my very first surgery. when i woke up i hade a 10 inch incision on belly. my appendex was on the wrong side and about to blow.
i go home
1 day later back in hospital, i developed peroentinotis.
after surgery up in my hospital room the doc come to room and asked to speak to my parents outside of my room. i remember praying to God please, just please this is not in my head, give me a small disease, just so my parents would believe my pain was real. to my relief at the time they all came back in and told me i had chron's.
ok! great! good! am i going to die? was not my thoughts. my thought was finally my parents may help me.
the guinie pig
so surgery was not something my parents were for. sooo first came the ng tube to put weight on me. i only weighed 70 lbs at 14. i was put on prednisone, tagamet just to name a few. i got a hernia on incision they fixed it.
then bloodwork showed no progress, docs in denver put feeding tubes in my breast. they wanted me to let intestines rest. so for 102 very long days i was not allowed to eat food, drink, chew gum. completly only tpn food by pump. sucked so bad. over the holidays too. but i did it, never even cheated.
so after letting them rest doc permitted liquid diet, ok i did, then mashed potatoes and i was done!
back in hospital, they removed 2.5 feet of small intestine, one fallopian tupe, and half of my uteris.
after surgery, with my daddy at my side, i was in hospital for 3 weeks. it was painful, my dad pushed me to be strong and walk and get better.
absolutly the best idea ever to remove the death inside of me. after that i was better and back on all you can eat foods. i did pretty well with no meds and stayed away from meat, milk, vegies, fruits, juices, and grain. i lived on carbs.
no meds, i did develop another hernia
then i became a wild child, lived it up, and got pregnant!! WHAT?
well i was so young when i had surgery, my female parts grew back, wth!
i was 21 when i had my miracle boy.
still no problems with chrons. baby two and three, still no problems.
until about 4 years ago. i would pertrude out in belly, so much i would be nauseous. puking was the only way to make tummy go back down. and pain to go away. i would flare up about every three months.
sooooooo, now after all the test again, my chrons is back, i have astenosis where they connected intestines back together, it is almost swollen completely shut. so i am very much distended and so not 9 mo prego. but i look it. i was on a steroid and pentasa, i had such a painful flair three weeks ago that my GI wants me to have surgery asap. sooo, my surgery is on may 31, i am nervous. they are going to cut me open higher, take my gall bladder, and the surgeon is worried about internal (abstruction)and external scar tissue. i am nervous, very becuse i am a stay at home mom that loves her babies, hubby, and life. i am worried. ugh. so if you were able to finish my painful, lack of puncuation post, i applaud you, i kind of did this for me to remember so long ago.
when i was young, very young i refused to eat meat, and drink milk. bio mom never argued. as a child my tummy always hurt. step mom insisted i was a hypochondriac. very seldom taken to doctor. everyday i walked home from school in pain. i lived with it, it was in my head.
when i was 14 the pain was so bad i could not stand up strait. mom (step) had to take me to doctor. that doctor said i needed a specialist. specialist poked my tummy one time, and sent me strait to xray. xray insisted i must be pregnant, i was humuliated, trying to explain to my dad i was a vergin and there was no way. they could see something but did not know what. so docs wanted to cut me open and put camera in. so off to my very first surgery. when i woke up i hade a 10 inch incision on belly. my appendex was on the wrong side and about to blow.
i go home
1 day later back in hospital, i developed peroentinotis.
after surgery up in my hospital room the doc come to room and asked to speak to my parents outside of my room. i remember praying to God please, just please this is not in my head, give me a small disease, just so my parents would believe my pain was real. to my relief at the time they all came back in and told me i had chron's.
ok! great! good! am i going to die? was not my thoughts. my thought was finally my parents may help me.
the guinie pig
so surgery was not something my parents were for. sooo first came the ng tube to put weight on me. i only weighed 70 lbs at 14. i was put on prednisone, tagamet just to name a few. i got a hernia on incision they fixed it.
then bloodwork showed no progress, docs in denver put feeding tubes in my breast. they wanted me to let intestines rest. so for 102 very long days i was not allowed to eat food, drink, chew gum. completly only tpn food by pump. sucked so bad. over the holidays too. but i did it, never even cheated.
so after letting them rest doc permitted liquid diet, ok i did, then mashed potatoes and i was done!
back in hospital, they removed 2.5 feet of small intestine, one fallopian tupe, and half of my uteris.
after surgery, with my daddy at my side, i was in hospital for 3 weeks. it was painful, my dad pushed me to be strong and walk and get better.
absolutly the best idea ever to remove the death inside of me. after that i was better and back on all you can eat foods. i did pretty well with no meds and stayed away from meat, milk, vegies, fruits, juices, and grain. i lived on carbs.
no meds, i did develop another hernia
then i became a wild child, lived it up, and got pregnant!! WHAT?
well i was so young when i had surgery, my female parts grew back, wth!
i was 21 when i had my miracle boy.
still no problems with chrons. baby two and three, still no problems.
until about 4 years ago. i would pertrude out in belly, so much i would be nauseous. puking was the only way to make tummy go back down. and pain to go away. i would flare up about every three months.
sooooooo, now after all the test again, my chrons is back, i have astenosis where they connected intestines back together, it is almost swollen completely shut. so i am very much distended and so not 9 mo prego. but i look it. i was on a steroid and pentasa, i had such a painful flair three weeks ago that my GI wants me to have surgery asap. sooo, my surgery is on may 31, i am nervous. they are going to cut me open higher, take my gall bladder, and the surgeon is worried about internal (abstruction)and external scar tissue. i am nervous, very becuse i am a stay at home mom that loves her babies, hubby, and life. i am worried. ugh. so if you were able to finish my painful, lack of puncuation post, i applaud you, i kind of did this for me to remember so long ago.
