hey from the hospital!
Hey guys what's going on, my name is Joe...I'm 18 and from NJ. I had lyme's disease when I was 13 or 14. A little over two years ago I started feeling some Crohn's symptoms and soon later after a colonoscopy found out I had chrohn's. The disease was in a mild/moderate state at that point in time, but me being 16 and stubborn led me to believe there was actually nothing wrong with me because I felt fine after a few weeks of moderating my diet and taking pentasa. This is when I stopped taking pentasa and eating whatever again, and eventually I began to feel stronger symptoms.
I was hospitalized five times in the past few months. The first two with a bowel obstruction, the third time with a stricture that led to a perforated bowel which led to the most painful thing i've ever felt and an emergency temp-illeostomy surgery. They resected 20 inches of my intestine, most of it from my terminal-illeum and like 3 inches from my colon.
I've been feeling great from the time of that surgery (february) up until now but one day i noticed there was no output from my stoma, so after a day of waiting and running around and eventually throwing up i checked my self into the hospital. i was sent home probably a week later, thinking it was only a mechanical obstruction (me not chewing me food), so naturally i went back to a normal diet since i was trying to enjoy it before my reconnective surgery which was scheduled for this august. I was back in here two days later and have been struggling with passing foods, so it's been back and forth on my condition kinda for the past few days.
Thankfully I'm not in any pain, I listened to my parents this time and checked in as early as possible. So I've just been hanging out enjoying the wireless internet on the hospital, my diet keeps switching from nothing to clear liquids to full liquids to solids and back again, yesterday i passed a bunch of stuff but then drank some liquids and I've noticed some pressure and it's not passing again.
On monday I'm going to NY for a Colonoscopy and Illeoscopy and they're planning on bumping my reconnective surgery up to next week which is exciting! Additionally they are planning on resecting some more bowel if needed be, which is what it seems like. They're thinking the obstruction is a combination of residual Crohn's/adhesions.
I'm planning on changing my diet completely after surgery, I've already ruled out all meats and only eat fish...and I've been hearing a lot about the SCD diet, some people have sworn to me by the book "breaking the vicious cycle", so I'd love to hear any experiences you guys have with the diet it would really help.
Also, I blog about my Chrohn's/illeostomy escapades, so if you'd like to check it out check out my blog at www.teenageshitbag.blogspot.com. It's mostly me just making poop jokes and trying to make light of my situation while explaining what is going on. I'm fairly optimistic and hoping after this surgery I will be out of the woods for a while! Some of the stuff on there isn't really suitable for kids younger kids I feel, so make sure you check it out before showing to anyone really younger.
That's pretty much it about me, I'm a passionate musician, smoke pot (not sure whether I'm chalking that up to being a musician or the chrohn's haha), and am a pretty nice guy. Looking forward to reading more about other people's Chrohn's situations!
Hey guys what's going on, my name is Joe...I'm 18 and from NJ. I had lyme's disease when I was 13 or 14. A little over two years ago I started feeling some Crohn's symptoms and soon later after a colonoscopy found out I had chrohn's. The disease was in a mild/moderate state at that point in time, but me being 16 and stubborn led me to believe there was actually nothing wrong with me because I felt fine after a few weeks of moderating my diet and taking pentasa. This is when I stopped taking pentasa and eating whatever again, and eventually I began to feel stronger symptoms.
I was hospitalized five times in the past few months. The first two with a bowel obstruction, the third time with a stricture that led to a perforated bowel which led to the most painful thing i've ever felt and an emergency temp-illeostomy surgery. They resected 20 inches of my intestine, most of it from my terminal-illeum and like 3 inches from my colon.
I've been feeling great from the time of that surgery (february) up until now but one day i noticed there was no output from my stoma, so after a day of waiting and running around and eventually throwing up i checked my self into the hospital. i was sent home probably a week later, thinking it was only a mechanical obstruction (me not chewing me food), so naturally i went back to a normal diet since i was trying to enjoy it before my reconnective surgery which was scheduled for this august. I was back in here two days later and have been struggling with passing foods, so it's been back and forth on my condition kinda for the past few days.
Thankfully I'm not in any pain, I listened to my parents this time and checked in as early as possible. So I've just been hanging out enjoying the wireless internet on the hospital, my diet keeps switching from nothing to clear liquids to full liquids to solids and back again, yesterday i passed a bunch of stuff but then drank some liquids and I've noticed some pressure and it's not passing again.
On monday I'm going to NY for a Colonoscopy and Illeoscopy and they're planning on bumping my reconnective surgery up to next week which is exciting! Additionally they are planning on resecting some more bowel if needed be, which is what it seems like. They're thinking the obstruction is a combination of residual Crohn's/adhesions.
I'm planning on changing my diet completely after surgery, I've already ruled out all meats and only eat fish...and I've been hearing a lot about the SCD diet, some people have sworn to me by the book "breaking the vicious cycle", so I'd love to hear any experiences you guys have with the diet it would really help.
Also, I blog about my Chrohn's/illeostomy escapades, so if you'd like to check it out check out my blog at www.teenageshitbag.blogspot.com. It's mostly me just making poop jokes and trying to make light of my situation while explaining what is going on. I'm fairly optimistic and hoping after this surgery I will be out of the woods for a while! Some of the stuff on there isn't really suitable for kids younger kids I feel, so make sure you check it out before showing to anyone really younger.
That's pretty much it about me, I'm a passionate musician, smoke pot (not sure whether I'm chalking that up to being a musician or the chrohn's haha), and am a pretty nice guy. Looking forward to reading more about other people's Chrohn's situations!
