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Joined
Nov 25, 2011
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18
Location
Canada
Hey, just wanted to introduce myself before posting. I am a thirty-something male, just recently (July 2011) been diagnosed with IBD, not sure yet if it is Crohn's or Colitis, as the biopsy did not specify which. The doctor said it looked like Crohn's, so for now I will go with that.

Though I had been having what could be called digestive difficulties for several years, I really began having trouble a couple years ago with pain, bleeding, loose stool and frequent goings. I was diagnosed with a fissure two years ago, so I guess that was really the start of my problems. For the next while I managed symptoms as best I could with topical treatments and diet. This past July, because the bleeding had not stopped, I was referred for a sigmoidoscopy, after which I was diagnosed with IBD. I was prescribed Asacol, which helped somewhat with the discomfort, but not the frequency or bleeding.

In August I started having joint problems, mainly ankles and knees. The pain and swelling was so bad that some days I could barely walk. I was given prednisone for the joints, which worked great. However, my family doctor switched me to celebrex to get me off the prednisone. During the 12 days that I took the celebrex, my Crohn's symptoms became worse than ever, and I became rundown and exhausted, so I ended up back on the prednisone.

In November I had a colonoscopy, and it showed more inflammation and ulceration in the colon. As a result I am on a higher dose of prednisone, 40mgs, and still on the Asacol. Currently I am waiting for the results of blood tests so I can get started on Imuran, and then get off the prednisone. Also waiting on the blood test results to see if I am deficient in anything, or if there are any other problems, and then go from there. Since being on the higher dose of prednisone, my symptoms are getting much better and I do not have any joint problems. Hopefully, I will be able to tolerate the new medication and get off the steroids and have no joint problems. Heres to wishing.

So thats my digestion in a nutshell if anyone wishes to know, not really much of a conversation piece, but you get the idea. I'm just glad that I was diagnosed, know whats going on, and can get on with managing things. So many people spend so many years trying to figure out whats going on and get few answers or help. So I guess I've been lucky in that way. So, sorry for the book, hello to everyone, hope I can add something to this forum from time to time, and good luck.
 
Crohns is such a pain in the ass isn't it?


Welcome, from another young male! You'll find lots of help here. Hope to see you around on the forums
 
Hi there, Goldenholds! Welcome to the family. You're right about people having to spend much of their lives trying to figure out what's wrong with their bodies. It's a long hard road for too many. We have loads of people here in this forum who are still wondering...

Prednisone is a terrible life-saving drug! Do you have any wacko side effects? We have a great prednisone sub-forum here to dump your thoughts and feelings. http://www.crohnsforum.com/forumdisplay.php?f=80

And here's a link to our Arthritis sub-forum. http://www.crohnsforum.com/forumdisplay.php?f=82

I hope you stick around! It's good to meet new people in the same boat as the rest of us. Hang in there! :hug:
 
:welcome: GH, glad you found your way here! Hope we can help! I noticed you said you are on Celebrex... big warning Crohns people cannot take those or Ibuprofen. Makes the gut worse. Wished my past gp new that! Take care of yourself, I see you have lots of help here. :bigwave:
 
People with crohns can't take ibuprofen? That's good to know lol. I always take extra strength ibuprofen
 
Good to know, thanks. I haven't noticed anything physically, but I definately won't be using that again. Sorry for thread-jacking. Court is now back in session.

Did I say welcome? I think so. Welcome again! Lol
 
Thanks everyone for the warm welcome. I have been browsing this forum for a little while and have been impressed at the helpfulness and sincerity of the postings. Please be aware that sometimes I can be a little shy, so if any time I seem a little quiet, please be assured that I am still sincere and grateful for anyone’s suggestions or help.

To answer Jessi, I have been tolerating Prednisone fairly well. It has made me more hyper and talkative, or so they tell me. But as I am usually fairly mellow and quiet, the prednisone has been turning me into a more normal person. Or so they tell me. I take it with breakfast so it will be somewhat worn off by bedtime. I did find that taking it later in the day would make getting to sleep a chore. If I were to take any more than 40mgs though I would think it would be a problem.

And to Pen, I will agree that Celebrex is hard on the gut. I was dubious about taking it, but there have been some studies that showed that many people with Crohn’s can tolerate it for short term use. I was only supposed to take it for 2 weeks, then only as needed, so I figured I'd try it. I only made it 12 days. And then it took me two months to get over it.

Thanks again for the welcomes. See you all again soon.
 
Hi, I am a newbie to the forum as well. I have been on Prednisone quite a fews time and my biggest issue has always been the bloating of the face and weight gain. My doctor said it does have a way of giving quite a broad masculine build on the chest and shoulders - not ideal for a young female. I also struggle to come of it - I get to about 5-10mg and the symptoms will start up. The last time I was on Prednisone it took me 18months to get off it. I also bruise really easily - not sure if this is crohns or medication related. Anyhow welcome and goodluck!

Angrybird
 
Hey Angrybird, thanks for the welcome. Funny, I just posted to your story post too.

Being a male seems to make the Pred a little easier to deal with, as they say it can make you hairier as well, not really ideal for a young female. Not to mention the other non-cosmetic nasty side affects. When I did taper completely off it last month it was not fun at all. I only made it 5 days and though the crohns didn't react too bad, I felt like absolute crap and my ankles swelled so bad and hurt so much I couldn't get my shoes on and could barely walk. That got solved soon after when I got bumped up to 40mgs after my colonoscopy. So my ankles are fine now, chicken legs as I call them they are so skinny, but it means I will have to come off the pred again, not looking forward to that. So I hear your pain.

GH
 
JBecause of my problems getting off the Pred and the fact that trying to control my crohns with diet did not work I was put on Azathioprine - has this been mentioned at all?
 
Yes, I am currently waiting for blood tests to see if imuran is suitable for me. Also waiting for my next doctors appointment so he can get me started on it. Did you find it helpful angrybird?
 
For quite a while yes, I was started on 50 mg and eventually wound up on 200 mg. Unfortunately it then started to affect my white cell count and it had to be stopped but for easily over a year I felt great and didn't have a single days sick off work.
 
Welcome to the family!!:hug:
I have visited quite a few forums now (just to see what others are like) and this one is the best so far. You don't see humor in any other Crohns forum like you do in this one so I think you are in good company here. :ycool:
Sounds like you have had quite a journey to get to where you are now. Good LUCK! I hope everything keeps going well for you because half the stress is not know what the hell is going on in your body!
 
Thanks for the welcome Wife2Crohns.

Its been a journey into the unkown for sure, but I'm thankful I haven't had to deal with some of the severe symtoms that many people experience. Hopefully it will stay that way, at least I know whats going on so I have a good chance at keeping things in control. Here's to wishing.

GH
 

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