Hi I'm a newbie, thought I'd introduce myself! I'm 22, female, living in Oxford UK, and was diagnosed with Crohn's Disease when I was 15.
I've had a super-fun time with a load of different medications and treatments, *dreaded* pred in big doses :/ azathioprine (injections then oral), methotrexate, ng tube, infliximab, adulimumab, none of which worked. So in the summer of 2009 I had an open intestinal resection surgery (2 sections), which was HORRIBLE, but it made me better!
Apart from some weekly methotrexate, I was pretty much in med-free remission for the next few years (which was pretty convenient, time wise, as I started university September of '09 and graduated this June!)
Unfortunately, it's come back, it started flaring in about April, and has got worse and worse since, and after upping my methotrexate and starting on budesonide in August (which, OH SO SURPRISINGLY, given my drugs record, hasn't worked) I'm having to have another resection in November
I've had to go on long term sick from my lovely new graduate job, due to being so ill, and yeah, Crohn's can get pretty lonely, (despite wonderful friends, family and housemates that I know I'm lucky to have!) and I remembered I used to go on a forum for teens with Crohn's/UC back when I was first diagnosed, but couldn't find it again, so thought I'd find a new place to talk to a bunch of ill people about diarrhea and steroids :ybiggrin:
Sorry if that's long and boring, thought I'd come and say hello!
I've had a super-fun time with a load of different medications and treatments, *dreaded* pred in big doses :/ azathioprine (injections then oral), methotrexate, ng tube, infliximab, adulimumab, none of which worked. So in the summer of 2009 I had an open intestinal resection surgery (2 sections), which was HORRIBLE, but it made me better!
Apart from some weekly methotrexate, I was pretty much in med-free remission for the next few years (which was pretty convenient, time wise, as I started university September of '09 and graduated this June!)
Unfortunately, it's come back, it started flaring in about April, and has got worse and worse since, and after upping my methotrexate and starting on budesonide in August (which, OH SO SURPRISINGLY, given my drugs record, hasn't worked) I'm having to have another resection in November
I've had to go on long term sick from my lovely new graduate job, due to being so ill, and yeah, Crohn's can get pretty lonely, (despite wonderful friends, family and housemates that I know I'm lucky to have!) and I remembered I used to go on a forum for teens with Crohn's/UC back when I was first diagnosed, but couldn't find it again, so thought I'd find a new place to talk to a bunch of ill people about diarrhea and steroids :ybiggrin:
Sorry if that's long and boring, thought I'd come and say hello!