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Crohn's Disease Forum

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Joined
Mar 13, 2012
Messages
1
Location
Philadelphia, PA
Hi everyone,
I have been a fan of the forum for a while now but have never posted. Not sure why. I am 39 years old and was diagnosed with Crohn's when I was 33. I had symptoms since my early 20s, and looking back I have had many obstructions....before I even knew what they were.

I started on pentasa when i was first diagnosed and have taken prendisone and entocort on and off. For the past year, I have been taking azathioprine, but am still having symptoms. Had a nasty obstruction in Disneyworld in November....my vacation was not magical! I just had a colonoscopy last week and the Crohn's is now in my colon. I have strictures and disease in my small intestine. I am starting humira in the next two weeks, and if that doesn't work I will have surgery....my first.

I am tired of all of this but I am trying to be really positive. The daily struggle is my diet...I miss fruit and vegetables and wish I could not worry about what I can eat. It is really frustrating. I am sick of the symptoms. That said, I am really grateful for all that I am and all that I have. I have the best family in the world and they are so supportive. I have great doctors and know I am being helped.

I hope that I can give and get support here. And I thank everyone for being so willing to share their stories so that others can find guidance and support.

Thank you again.
 
I miss salads-peaches-oranges-cherrios and oatmeal. Oh, throw popcorn in there too!

Its so hard this thing we call IBD. And so hard to treat. I mean we all have the same but, different symptoms. We all have different food triggers. All of us respond differently to the same medications! We don't make it easy for the Dr to treat us!!

If you have a specific question just ask and I will try to answer!

Lauren
 
Hello and welcome to the forum :bigwave: Sorry to hear you are not doing so well at the moment, the Humira has done a good job for many here so fingers crossed it will do the same for you, perhaps have a look at our Humira sub forum to get details on this: http://www.crohnsforum.com/forumdisplay.php?f=59. Otherwise just have a good nosy around, there is a lot of really helpful info and support here from a great bunch of people.

Wishing you well soon

AB
xx
 

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