Hi everyone,
I have been a fan of the forum for a while now but have never posted. Not sure why. I am 39 years old and was diagnosed with Crohn's when I was 33. I had symptoms since my early 20s, and looking back I have had many obstructions....before I even knew what they were.
I started on pentasa when i was first diagnosed and have taken prendisone and entocort on and off. For the past year, I have been taking azathioprine, but am still having symptoms. Had a nasty obstruction in Disneyworld in November....my vacation was not magical! I just had a colonoscopy last week and the Crohn's is now in my colon. I have strictures and disease in my small intestine. I am starting humira in the next two weeks, and if that doesn't work I will have surgery....my first.
I am tired of all of this but I am trying to be really positive. The daily struggle is my diet...I miss fruit and vegetables and wish I could not worry about what I can eat. It is really frustrating. I am sick of the symptoms. That said, I am really grateful for all that I am and all that I have. I have the best family in the world and they are so supportive. I have great doctors and know I am being helped.
I hope that I can give and get support here. And I thank everyone for being so willing to share their stories so that others can find guidance and support.
Thank you again.
I have been a fan of the forum for a while now but have never posted. Not sure why. I am 39 years old and was diagnosed with Crohn's when I was 33. I had symptoms since my early 20s, and looking back I have had many obstructions....before I even knew what they were.
I started on pentasa when i was first diagnosed and have taken prendisone and entocort on and off. For the past year, I have been taking azathioprine, but am still having symptoms. Had a nasty obstruction in Disneyworld in November....my vacation was not magical! I just had a colonoscopy last week and the Crohn's is now in my colon. I have strictures and disease in my small intestine. I am starting humira in the next two weeks, and if that doesn't work I will have surgery....my first.
I am tired of all of this but I am trying to be really positive. The daily struggle is my diet...I miss fruit and vegetables and wish I could not worry about what I can eat. It is really frustrating. I am sick of the symptoms. That said, I am really grateful for all that I am and all that I have. I have the best family in the world and they are so supportive. I have great doctors and know I am being helped.
I hope that I can give and get support here. And I thank everyone for being so willing to share their stories so that others can find guidance and support.
Thank you again.