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Crohn's Disease Forum

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Joined
Feb 6, 2013
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I've been poking around the forum for about a month, but I guess it's finally time I introduce myself.
I'm a 20 year old college kid who was just recently diagnosed with Crohn's at the end of December 2012. Originally I thought it was severe lactose intolerance because I've been dealing with that ever since I can remember. However, as things started to worsen once I left for college, I decided to cut all dairy out of my diet for good. I felt good for about three days before my symptoms returned with a vengeance. My PCP told me that it probably wasn't a big deal and wasn't it a good thing if I was losing weight? (I'm not big, I have hardly any weight to lose!) With my symptoms, mostly pain and diarrhea, getting worse, I decided to go to a GI doctor on my Christmas break back home. With my blood work looking fine, he believed it was IBS. He still wanted to do a colonoscopy to make sure everything was ok. That was done three days before I had to fly back to school. The results came in my second week of school. I had mild inflammation in my small intestine and the biopsy came back as Crohn's.
Since then, I've been on 4g of Pentasa a day, a general vitamin supplement, vitamin D, and calcium. My doctor wants to have me get a ct scan to confirm the crohn's diagnosis and to make sure nothing else is going on. However, with my insurance, getting a ct scan out here is super expensive and I'm going to have to wait until I can fly home in April to get one done in my home state where insurance will cover more of the cost.
With the degree of my symptoms varying from week to week, I don't think April could come soon enough!
Well, that's me in an extremely small nutshell. Thanks for reading!
 
Hiya trailrunner
and welcome

Glad you've stopped lurking and joined us, lots of young uns on here for you (and dinosaurs too!)
Hopefully Pentasa will stable you until after your scan, then you can discuss other maintenance meds.
You could try a low residue diet and keep a food diary too. This will help your doc too.
You don't lose weight with IBS.
Good luck xxx
 
Hi, welcome to the forum! Glad you've decided to join us! :)

If you don't mind sharing, what are your current symptoms? How long have you been taking the Pentasa?

:hug: I hope things get better for you soon!
 
Welcome to the forum! I got diagnosed in while I was in college too. Granted, it was YEARS ago, but I was told then that the biopsy was the most definative of the test to tell it is indeed Crohn's.
 
Welcome!!

I was also diagnosed in college a longggggg time ago. I agree, biopsy is the best way to diagnose and monitor the progression of this illness.

I did really well on pentasa. I wish you the same success!!
 

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