M
monicaleigh
Guest
Hi Everyone!
My son Joe is 15 and just diagnosed 2 months ago with chrons. What a nightmare this has been. Where do I begin. He has been in the hospital 4 times in 3 months has had 5 blood transfusions. At present, he is on TPN (IV nutrition & Meds) 16 hours a day and no food or water for 2 months (we are currently in 3rd week). He has a huge ulcer in the duodenum that was/is so inflamed that it closed off is stomach and no food was passing through so he vomited every time he ate. He is currently using prednisone, methotrexate, and remicade. The Dr. thinks with total bowel rest, we MAY be able to avoid surgery. This weekend we ended up in the hospital for a blood transfusion, blood in stool, and stomach pains. I can't believe the downhill spiral we have experienced in such a short amount of time. We meet with GI tomarrow for blood count, weight check, etc. Has anyone ever heard of complete bowel rest and no food or water for months helping? I would appreciate any input.
Thanks
My son Joe is 15 and just diagnosed 2 months ago with chrons. What a nightmare this has been. Where do I begin. He has been in the hospital 4 times in 3 months has had 5 blood transfusions. At present, he is on TPN (IV nutrition & Meds) 16 hours a day and no food or water for 2 months (we are currently in 3rd week). He has a huge ulcer in the duodenum that was/is so inflamed that it closed off is stomach and no food was passing through so he vomited every time he ate. He is currently using prednisone, methotrexate, and remicade. The Dr. thinks with total bowel rest, we MAY be able to avoid surgery. This weekend we ended up in the hospital for a blood transfusion, blood in stool, and stomach pains. I can't believe the downhill spiral we have experienced in such a short amount of time. We meet with GI tomarrow for blood count, weight check, etc. Has anyone ever heard of complete bowel rest and no food or water for months helping? I would appreciate any input.
Thanks