Hi I'm Persian. It's a pleasure

[Persian]

It's a pleasure to meet yall. No pleasure in suffering from Crohn's Disease.

I never heard of the disease until it was super obvious I had the condition. I started with weight loss, gradual at first. Then a rectal abscess creeped up. A general physician treated it. Cut it out, packed it every day despite the pain. Operated on the fistula by cutting it, making me unable to hold to control my bowels for a long time. Things looked better but lost a lot of weight. The area operated on looked like it was healing but then it got infected again.

He recommended a colon/rectal specialist who right away noticed I showed signs of Crohn's disease. I went to a GI who diagnosed me. I still see the Colon/Rectal specialist because I have multiple fistulas in my rectum and is the main source of discomfort.

What a road it has been. I have lost 40 lbs. Cannot gain it back, at least not yet. My appetite is back and my meals eaten to trips to the bathroom ratio is 3:2 which is better when I used to eat twice a day and go to the bathroom 10 times a day.

Hope I haven't ranted too long, but I found this site a while ago and find some comfort in reading yalls stories. It's nice to know there are people out there who can totally relate to what I am going through

 

[DustyKat]

Hi Persian and :welcome:

You should see the length of my introductory post! :lol:

Ouch that sound painful.........like you say there are many kindred spirits here so you will be a very welcome addition. What meds are you on??

Good luck and welcome aboard!

All the best,
Dusty

 

[Dexky]

You keep sayin' y'all Persian...so you must be from South Persia. What meds do they have you on following your diagnosis? Good to have you here. Welcome!!!

 

[Persian]

Hi Persian and :welcome:

You should see the length of my introductory post! :lol:

Ouch that sound painful.........like you say there are many kindred spirits here so you will be a very welcome addition. What meds are you on??

Good luck and welcome aboard!

All the best,
Dusty

I will check it out, I should of put TL;DR at the end of my post

I have problems sitting down. Tissue in my rectum hasn't fully healed yet and it creates a ton of pain for me when I sit down.

I am on Imuran and Humira at the moment. I was on flagyl for the longest time. i got off it and there was an infection scare so my doc put me back on it and this time around my body didnt react kindly to its return. massive stomach ache and I spent the next two days throwing up non stop.

 

[DustyKat]

Oh, that sucks.

I hope the Imuran and Humira do the trick. Keep us posted. Have you seen the Humira Club thread......................

http://www.crohnsforum.com/showthread.php?t=6500

Dusty.

 

[Persian]

You keep sayin' y'all Persian...so you must be from South Persia. What meds do they have you on following your diagnosis? Good to have you here. Welcome!!!

hahaha Im a half Persian born and raised in Houston, Texas. The stereotypical accents you think of from Texans are from West Texas. If I do have an accent well I cant hear it

Oh, that sucks.

I hope the Imuran and Humira do the trick. Keep us posted. Have you seen the Humira Club thread......................

Dusty.

Imuran and Humira have helped me because I am in a lot better shape now than I was when I first started. I still have a while to go. my docs keep telling me its a long recovery. my fistulas in my rectum have been draining since 2009 and its honestly the most inconvenient symptom. the stomach cramps are mostly gone, because I have switched to organic meats which sit well in my stomach along with learning what I can and cant eat.

 

[Astra]

Hi Persian
and welcome

Yes we defo understand what you're going thro alright!
so sorry you're struggling with the fistulas, I'm not familiar with these, never had one, but they sound awful!
glad you found us and besta luck with the Humira and Aza
lotsa luv
Joan xxx

 

[seaofdreams]

Welcome to the forum Persian!
I hope you find an improvement with the Humira and Azathioprine

 

[Persian]

Welcome to the forum Persian!
I hope you find an improvement with the Humira and Azathioprine

"Never feel guilty for being sick and stop comparing yourself and your life to those who don't have Crohn's. You're doing the best you can under the circumstances and you're doing great.

I love this quote. Someone I know with Crohns also told me never feel guilty for being sick when I asked for advice when I was first diagnosed.