Hi. My names Andy

[ByeByeCurryAndKebab]

I was recently diagnosed with crohns about 2 months ago, but things have been going on for just under a year now. As i know everyone is different, but do most people have good days and bad days, even with a good medication? Oh by the way i am on Azirpropine (sp) and just finished my 2nd course of pred. Also does anyone suffer with frequent headaches?

 

[soupdragon69]

Hi Andy,

Welcome to the forum! Good to hear you have a solid diagnosis even if it is not good news. At least now you can fight back.

You are right that many of us have good and bad days and it can be a case of pacing yourself, resting when you need to (though frustrating at times) and doing what you can when up to it.

Headaches can be a side effect of some meds or stopping meds like pred for instance. Could also be down to dehydration too so make sure you are drinking enough!

Good to see you here. Looking forward to seeing you post more on the other threads.

Welcome again!

 

[Nancy Lee]

Hello Andy!

I just wanted to pop in and say welcome to the forum!

I get headaches quite often but they have been linked to the meds I'm on
are seem to be a side effect.

Hope you enjoy your time here and find lots of useful information.

Welcoming hugs,
Nancy

 

[Isla]

Howdy ho ho ho, welcome and all that good stuff! Are you having good and bad days? I have been in a flare so long, it's hard to remember "normal" days.

 

[Guest]

hi Andy, welcome to the forum

yep i certainly have good & bad days, and i've learned over time to listen to your body on the bad ones. if i don't feel like keeping a social appointment i've made, i simply let people know now, and go for a rest instead - this is something i found hard to do in the early days. and i do suffer very often from headaches, in my case probably not med-related, but my gp hasn't fathomed out why i do get them. quite possibly its a Crohns thing..

good to have you aboard

 

[jed]

welcome andy!

sorry you had to join this misfit forum, but there are a lot worse places to join.

tons of great info and support all thru this site.

i'm actually happy i've found a forum where bodily functions are considered taboo topic

 

[ByeByeCurryAndKebab]

Hello everyone. I just want to say thank you for the warm welcome i have recieved here, and i am just glad i have someone to talk to that knows whats going as as well, rather than my friends or familly who dont have a clue! To answer islas question, i feel as i am going to have a good day,i woke up with no headache, although i did go to the loo after my breakfast. Just another question quickly, having being diagnosed with CD do i have to go for frequent test e.g colonoscopies and barium meals and bloods and all that stuff?

Its good to be aboard!

 

[jed]

rather than my friends or familly who dont have a clue!

quite common that, unless a family member has it, its highly unlikely they'll know about it.

feel to have them register, or just browse thru this website. if you have close family and friends they can also learn a great deal here for there own benefit

 

[Isla]

Ya I think the testing really depends on the progress of your disease. If you are in remission and have a bad flare that is not responding to medication or new symptoms arise they may want to do more of the "invasive" testing - like colonoscopies, upper endoscopies, barium enemas.

But if your worried that your diagnosis means that now you will have a long life of repetitive and frequent testing, don't worry it isn't that way. There are so many ways out there to help you deal with your diagnosis and symptoms that constant rigorous testing is not necessary. So hopefully that will alleviate your worries!