HI , New to this

[CHESTER48]

Ok, this is me, i have every few weeks cramps that last about 12-18 hours then stop , once 4-6 weeks i may get a bout of diarrhoea. I get feelings of bloating with the cramps but no diarrhoea. No blood or stool change. GP did Calprotectin test and result was 400. . now he thinks IBD/Crohn's/UC but do i fit the picture fully - not sure i do.

I had a ct scan a few weeks ago and all is clear,

any thoughts out there ...

 

[Clash]

There truly isn't one picture for CD. It can depends on location of disease, severity, etc as to how your symptoms present.

More than IBD can cause raised fecal calprotectin numbers though so it could be something else. Virus, parasites, SIBO, gastritis. Further testing should help discover the issues.

My son has CD and his "common symptoms" never really included diarrhea. Mouth ulcers, abdominal pain, night fevers were his signs of a flare. His disease is still active now yethat he is asymptomatic.

Hopefully further testing can determine what you are dealing with

 

[ronroush7]

I could be wrong. I think your calprotectin level is high. I hope you get some answers soon.

 

[CHESTER48]

Thanks Guys,

Yes the GP said the level is high so is referign me to Gastro team for there opinion – I was thinking IBS but that does not elevate the calprotectin levels, I do use ibuprofen quite a bit and these are meant to raise levels - I thought Crohn's and IBD caused flare ups that lasted days or weeks not just a few hours..

 

[Clash]

Your fecal calprotectin is a bit raised so it's good that you are seeing a GI they can probably get to the bottom of what's going on. I know sometimes answers alone bring relief. When my son has simmering inflammation but no symptoms his fc is around 300+. But first year after being dxed his highest was 1700. FC can't really tell you how bad you symptoms should be

NSAID use can raise fc numbers as well other things besides IBD so further testing is definitely warranted.


Flares (active CD inflammation) can last week's months years etc but it doesn't mean you are constantly symptomatic.

Since you are so early in trying to determine the cause of raised FC numbers and your issues I wouldn't focus in on one thing it could be. I know it's hard but further testing will more than likely make the picture clearer.

 

[CHESTER48]

I do also take trymethoprin and amatrypline , and a bit of codine at times, I this all started when I had chemo radiotherapy after my groin and pelvic nodes got taken out so there has been much work done inside me,,, perhaps this could be part of it all.