Hi newbe here

[suzi]

hi newbe here

new on here, had collitis for 6 years now also got crohns for the past 4 years, was very lucky to have nearly 8 years of a pretty controlled and good remission times, after moving house and hard and awkward 18 months had two bad flare ups, in the end after 2 peroids in hospitol they gave infliximab as a last resort and been good since.............:worthy: :worthy: :worthy: infliximab

just found out i'm now pregnant................!!!!!!!!!!!! oh s#1t:eek2:

 

[Nancy Lee]

Welcome

Hi Suzi!
I just wanted to say welcome to the forum
and congrats on the pregnancy!!

Hope you will stick around, read and share more with us.

Hugs~Nancy

 

[ruthymg]

Hi Suzi and welcome. Congratulations on your news!!!

Are you from the UK?, only we know Remicade as Infliximab in the UK. Have you been taking Methotrexate too?


Ruth

 

[suzi]

hi yes from burnley lancashire could be near you. i havent taken methotrexate but i'm on asacol and mercapterpurine plus remicade. Going next friday for the remicade i have it every eight weeks if i didnt have that i would have to have surgery. bye suzi

 

[ruthymg]

I'm from near Holmfirth, so not that far at all.


Ruth

 

[supergurl]

can collitis become crohns? how does that work? or were you misdiagnosed?

 

[TammySue62]

Hi supergurl
Can Colitis become CD?
Well I asked my GI that question not to long ago and he said noway.Hes pretty up to date on his information on IBD,Colitis and Crohns. As he flys around the world giving speeches and seminars on this topic. He is also chief of GI at ST. JOES HOSPITAL. And his oldest Daughter just got diagnosed with CD in the summertime,but she has to see a different GI here in Canada.She cant go to her dad ,she must see another GI. But he gives her advise and I gave him this forum to give to his daughter so she can join too. I had to go for my remicade yesterdayand was gonna ask my GI if she had joined,but he was off somewhere doing another seminar.
So an answer to your question in my opinion would be NO.

 

[DanSJVDavis]

Yeah, just looked it up a bit ago and Colitis can't become Crohn's, but Crohn's can be mistaken for Colitis, as Crohn's can form in the colon and the two look sort of similar. You can also end up with both UC and Crohn's in the same gut.

Thing that I've always wondered about is the possibility of getting Crohn's and IBS at the same time. One calls for low fiber and the other high fiber...what would you eat?

 

[supergurl]

Hi Tammy
st. joes, is that in Hamilton, Ontario? Have you ever been to a support group that meet in person in Ontario. do suh things exist anymore

 

[pb4]

Hi all

From what I've learned, there is a 2-5% chance of having BOTH CD and UC (which are two seperate forms of IBD)...colitis itself means inflammation in the colon, which can be caused by either crohns (crohns-colitis) which I myself have, or UC (ulcerative colitis)...

UC cannot "turn into" crohns or vise-versa but like I mentioned above, there is only a small % of having BOTH conditions....

Typically when one has CD there are skipped patterns of inlfammation/leisions compared to when one has UC, then typically for UC the entire area is inflammed with no skipped patterns. However when docs are not sure via colonoscopy of what exactly they're seeing, they will DX a patient as having indeterminant colitis (being either CD or UC)...CD can affect the entire GI tract from the mouth to the anus and UC is limited to the colon with occassional rectal (proctitis) being involved...also, CD typically can go through the many layers of the intestinal tissue whereas UC is surfaceable, that's why fistulas don't occur with UC, only with CD and not all CDers experiance them either.

Many of the drugs used to treat UC are used to treat CD when it's affecting the colon (crohns-colitis) and rectom (proctitis) because certain meds reach certain areas of the intestines. These same drugs are also used to try and help those with ischemic colitis (another condition where inflammation occurs in the colon only).

Hope this helps some

 

[TammySue62]

Answers

Hi Tammy
st. joes, is that in Hamilton, Ontario? Have you ever been to a support group that meet in person in Ontario. do suh things exist anymore

Yes there is ST. Joes Hospital in Hamilton
No I havnt been to a support group.
I think they exist, I know that M and M Meats is a sponser
Are you from Hamilton?
I sent you an e-mail
Later

 

[TammySue62]

CD or Colitis

Hi all

From what I've learned, there is a 2-5% chance of having BOTH CD and UC (which are two seperate forms of IBD)...colitis itself means inflammation in the colon, which can be caused by either crohns (crohns-colitis) which I myself have, or UC (ulcerative colitis)...

UC cannot "turn into" crohns or vise-versa but like I mentioned above, there is only a small % of having BOTH conditions....

Typically when one has CD there are skipped patterns of inlfammation/leisions compared to when one has UC, then typically for UC the entire area is inflammed with no skipped patterns. However when docs are not sure via colonoscopy of what exactly they're seeing, they will DX a patient as having indeterminant colitis (being either CD or UC)...CD can affect the entire GI tract from the mouth to the anus and UC is limited to the colon with occassional rectal (proctitis) being involved...also, CD typically can go through the many layers of the intestinal tissue whereas UC is surfaceable, that's why fistulas don't occur with UC, only with CD and not all CDers experiance them either.

Many of the drugs used to treat UC are used to treat CD when it's affecting the colon (crohns-colitis) and rectom (proctitis) because certain meds reach certain areas of the intestines. These same drugs are also used to try and help those with ischemic colitis (another condition where inflammation occurs in the colon only).

Hope this helps some

Wow pb4 thats some good information. So know Im confused because my GI says there is no way you can have both. He is very knowledgeable too Hes right up to date on CD. He flys around the world and gives speeches and seminars ON CD.
Im gonna have to print this information of yours and show it to him. I just saw him 2 days ago,wont see him untill another 2 wks.
Thanks again

 

[pb4]

Hi Tammy

Ya the 2-5% chance of having both UC and CD really blew my mind too...I'm a member of the CCFC (canada) and I submitted my question to the "Dear Doctor" about whether or not one person could have both CD and UC and that's what he quoted...he happens to be my GI as well and has his own research programs, his name is Dr. Remo Pannacioni, so he's right up there too with regards to knowledge and all when it comes to both CD and UC..

Definitely share the info with your GI, maybe when he sees who it's comming from (Remo Pannacioni) he might still disagree or change his mind and agree LOL! I'm sure some of these top researching GI's feel competative with one another know what I mean...I'll be interested to hear what your GI says about it all....mind you for the population of IBD world-wide, 2-5% is actually quite small, so it is very very rare to have both but apparently it happens, it shocked me too, but then again they are also classified as 2 seperate diseases....some GI's disgaree that an IBDer can also suffer with IBS as well, my GI suspects I have IBS as well as my crohns, so we know where he sits regarding that, what does your GI think about one patient being able to have both IBD and IBS together? I'm also lactose intolerant, but you know, taking the primadophilus reuteri has really helped with that (and it even states it on the information about that probiotic).

talk to you soon!

 

[TammySue62]

The Dr Duel

HI pb4
IM gonna print this and take it in to my Gi about you DR Remo Pannacioni and see what he has to say.
AS for IBD and IBS i never asked him that but I will defineately.
I dont no if my DR will change his tune or not. Time will tell.
I sent you a pm before I saw this post. So thats why it might seem a bit confusioned.plus its like 12.30 at night and im getting tired. It was a long a rough day. I will post what happened to me today tomorrow.(That sounds wierd) Oh well.
Later

 

[TammySue62]

memory loss

Hi Tammy

Ya the 2-5% chance of having both UC and CD really blew my mind too...I'm a member of the CCFC (canada) and I submitted my question to the "Dear Doctor" about whether or not one person could have both CD and UC and that's what he quoted...he happens to be my GI as well and has his own research programs, his name is Dr. Remo Pannacioni, so he's right up there too with regards to knowledge and all when it comes to both CD and UC..

Definitely share the info with your GI, maybe when he sees who it's comming from (Remo Pannacioni) he might still disagree or change his mind and agree LOL! I'm sure some of these top researching GI's feel competative with one another know what I mean...I'll be interested to hear what your GI says about it all....mind you for the population of IBD world-wide, 2-5% is actually quite small, so it is very very rare to have both but apparently it happens, it shocked me too, but then again they are also classified as 2 seperate diseases....some GI's disgaree that an IBDer can also suffer with IBS as well, my GI suspects I have IBS as well as my crohns, so we know where he sits regarding that, what does your GI think about one patient being able to have both IBD and IBS together? I'm also lactose intolerant, but you know, taking the primadophilus reuteri has really helped with that (and it even states it on the information about that probiotic).

talk to you soon!

I too am lactose intolerant. NO dairy product for me. Only on a good day. I must try that primadophilus. VSL#3 works really well for me:yrolleyes:

 

[Karen]

I am sure that you will have a great time here and you will also make plenty of new friends ... jump right in and have some fun !!