How long did you take Cipro or Flagyl?
- Thread starter Mazen
- Start date
Help Support Crohn's Disease Forum:
- Joined
- Jan 7, 2009
- Messages
- 896
Hi Mazen,
I have posted extensively on this subject because I also take them a lot. They are the only thing that works for me. I have a complex fistula, meaning it has branches like a tree, which become very infected (abcesses) when I don't take the drugs. I have tried Cipro on its own, but it appears I need the flagyl. I usually do a month cycle, then take a month off. About that time, the infection is starting to return and I start back up. I have been doing this cycle for over a year (not that exact schedule, it has been trial and error figuring out exactly what works). I do not like the idea of taking them long term either. I have experienced the tingling limbs with the flagyl and I know that Cipro has some other possible serious side effects.
Today I am going to have a flap advancement surgery. My fitula is external (rectovaginal), so the surgery is a pretty simple outpatient procedure. This is where they clean it all out and take a healthy piece of tissue and graft it over the internal opening of the fistula. I had it done before in 2006 for the same fistula, but it returned a year later. I am keeping my fingers crossed for this one. I would like to get some relief once and for all.
If I remmber right, you have an internal fistula, right? I know the surgery would be a lot more major, but there are people on this forum who have had surgery (ileostomies, I think) after dealing with persistant fistula problems who have said they wish they had done it sooner.
Good luck with everything. Whatever you end up doing, I hope you finally get some refief.
I have posted extensively on this subject because I also take them a lot. They are the only thing that works for me. I have a complex fistula, meaning it has branches like a tree, which become very infected (abcesses) when I don't take the drugs. I have tried Cipro on its own, but it appears I need the flagyl. I usually do a month cycle, then take a month off. About that time, the infection is starting to return and I start back up. I have been doing this cycle for over a year (not that exact schedule, it has been trial and error figuring out exactly what works). I do not like the idea of taking them long term either. I have experienced the tingling limbs with the flagyl and I know that Cipro has some other possible serious side effects.
Today I am going to have a flap advancement surgery. My fitula is external (rectovaginal), so the surgery is a pretty simple outpatient procedure. This is where they clean it all out and take a healthy piece of tissue and graft it over the internal opening of the fistula. I had it done before in 2006 for the same fistula, but it returned a year later. I am keeping my fingers crossed for this one. I would like to get some relief once and for all.
If I remmber right, you have an internal fistula, right? I know the surgery would be a lot more major, but there are people on this forum who have had surgery (ileostomies, I think) after dealing with persistant fistula problems who have said they wish they had done it sooner.
Good luck with everything. Whatever you end up doing, I hope you finally get some refief.
- Joined
- Aug 8, 2009
- Messages
- 156
Mitch (my son) took cipro and flagyl for 3 months, he was on 2 x 500 mg cipro and 2 x 250 mg flagyl per day. The flagyl really messed with him. He was on it for his abscess/fistula. He did have less pain with the abscess when he was on it, but it never completely cleared up and when they took him off of it at the end of June the abscess came back with a vengance. They wanted to put him back on it after his next appt in August but we felt that if all it did was knock back the infection and then it just came right back - what was the point, (Dr. didn't really have an answer to that). Also, the cipro is supposed to have bad side effects for growth plates in adolescents.
We put him on LDN and SCD in August and the abscess has shrunk from 5 cm to 1 cm. It was also so painful in the summer that he didn't know how he was going to sit in school, now it is still somewhat painful but sitting is not a problem.
Obviously there is a bacterial component to the abscess and we are now trying to adress this with MMS, somewhat controversial I know, but that's what we're doing.
We put him on LDN and SCD in August and the abscess has shrunk from 5 cm to 1 cm. It was also so painful in the summer that he didn't know how he was going to sit in school, now it is still somewhat painful but sitting is not a problem.
Obviously there is a bacterial component to the abscess and we are now trying to adress this with MMS, somewhat controversial I know, but that's what we're doing.
- Joined
- Sep 19, 2008
- Messages
- 972
Hiya Mazen,
I was on Flagyl, on and off, for years.
I've tried to remember the dosages, I think it was generally for 3-4 weeks, then a break of about 1-2 months.
It always worked up until a point for me. But the infections always came back. So it was only ever a short term solution.
I was on Flagyl, on and off, for years.
I've tried to remember the dosages, I think it was generally for 3-4 weeks, then a break of about 1-2 months.
It always worked up until a point for me. But the infections always came back. So it was only ever a short term solution.
nogutsnoglory
Moderator
- Joined
- Sep 23, 2009
- Messages
- 9,085
cipro and flagyl did nothing for me, i took them flagyl for 2 weeks and cipro for about a month?
