Ive had crohns for over 5 years now, but the past year has been the worst. I was on remicade for 4 years and then it seemed to not be as effective so we switched to humirA 10 weeks ago. my question is should I wait it out or see about trying something different. as I said ive been taking 1 shot every 2 weeks for about 10 weeks now. I still have alot of problems. ive had accidents recently, still going about 6+ times a day, and almost always very watery D. pretty much I can go to the toilet anytime of the day and have watery D without really having to try, it just comes out. thus the recent accidents. Ive read it could take 12 weeks + but I feel it should be helping alot by now. How did you know/feel when it started to work? Did you just wake up one day feeling great or was it a slow transition. Also how long did you take to get results?
How long should I wait for humira to work\not?
- Thread starter jeffmorrr
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Have you talked to your doc about going to weekly? I did that, although I think some insurance companies (at least in the U.S.) require you to try it for six months first. We skirted that by my doctor's office giving me samples that they had to fill the gaps until insurance would approve.
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It can take a while for some. We are approaching month 3. Every couple of days we think we are seeing a difference here and there. Remicade was much more obvious it was working. We have seen a difference in lab results & scopes/mre's but not on symptoms. Doc wants us to stay at dosage for at least another month and see how it goes.
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It can take a few months to really kick in. Please be patient.
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Jeff have you been checked for c diff? I ask because my kid recently had it and we thought the meds werent working. Now that her c diff is gone there hasnt been a miracle (still 5-6x a day, 1x at night), but the diarrhea is gone. Just a thought
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jeffmorr, I could've written your post myself. I've been on Humira since October and have had no relief. In fact, I'm on my second pulse of prednisone, in addition to entocort, and pentasa, in order to get a little relief. It's terrible. My doc wants to test me for the antibodies, but the test is $2500 and the insurance company is balking a bit. If they approve it and I have antibodies, he'll switch me to Remicade (never been on that one before). If I don't, then he'll up me to once a week. Either way, I'm so frustrated - I just want to be better.
Hi!
This is a great question because it applies to all medications we get pushed by our medical professionals.
I spent 8 months on Humira and throughout the experience i kept asking my doctor if there was a way to test my body's reaction to the new medication. I'm based in Ireland and those tests do not exist here. However it did raise a concern that i've always had and that is that drugs are prescribed based on scientific evidence gathered from sample sizes of the population. When my doctor prescribed my Humira did he care what blood type or other genetic variations might be unique to me? I don't think so.
In the end Humira was a bad experience for me, i think its important that when a doctor is prescribing a drug that he also has a way of testing its effectiveness, not just by asking about a patients symptoms but by seeing how exactly that drug is interacting with the patients system. Maybe I'm looking for the impossible but i think standards need to be raised in terms of trying out new drugs...
This is a great question because it applies to all medications we get pushed by our medical professionals.
I spent 8 months on Humira and throughout the experience i kept asking my doctor if there was a way to test my body's reaction to the new medication. I'm based in Ireland and those tests do not exist here. However it did raise a concern that i've always had and that is that drugs are prescribed based on scientific evidence gathered from sample sizes of the population. When my doctor prescribed my Humira did he care what blood type or other genetic variations might be unique to me? I don't think so.
In the end Humira was a bad experience for me, i think its important that when a doctor is prescribing a drug that he also has a way of testing its effectiveness, not just by asking about a patients symptoms but by seeing how exactly that drug is interacting with the patients system. Maybe I'm looking for the impossible but i think standards need to be raised in terms of trying out new drugs...
Well I have been on it ofr over 12 weeks now and still not rally noticing much improvement.
Some days I think the benefits have kicked in then I have another bad few days.
Maybe I am expecting too much?
What would you say is a realistic expectation to be called a success?
Some days I think the benefits have kicked in then I have another bad few days.
Maybe I am expecting too much?
What would you say is a realistic expectation to be called a success?
Been 3 months now and still not really getting much benefit.
Had a GI appt last week and he is seems to think it is doing somethign as my bloods look good and I am puttign on weight
Why O Why am I still getting pain BM's, bloating and cramping then? GI says that Humira is not a perfect solution and at the end of the day I have IBD. Maybe I was just hoping for too much:confused2:
Had a GI appt last week and he is seems to think it is doing somethign as my bloods look good and I am puttign on weight
Why O Why am I still getting pain BM's, bloating and cramping then? GI says that Humira is not a perfect solution and at the end of the day I have IBD. Maybe I was just hoping for too much:confused2:
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Some have waited 6 months to see a difference. We are on 4.5 months now. Not much difference here, but we are also doing a prednisone taper that skews the view on if its working or not.
