- Joined
- May 5, 2016
- Messages
- 16
DD re-developed her mouth ulcers over the weekend. And her throat is sore so I imagine they are running through her digestive tract again The mouth sores were one of the first clues that the GI nurse practitioner used to diagnose her Crohn's at the beginning. (what two other doctors said were caused by an eating disorder!)
Given her symptoms I am sure this means the inflammation is not in control. Her doc is sending us for labs today to get a Remicade level "mid infusion cycle" to confirm if yes indeed she is burning through her Remicade too quickly right now (she is only getting relief after an infusion for about 10-12 days)
Wondering if any of your kiddos experienced the mouth sores, and if so, any successful treatment to help alleviate her pain?
Given her symptoms I am sure this means the inflammation is not in control. Her doc is sending us for labs today to get a Remicade level "mid infusion cycle" to confirm if yes indeed she is burning through her Remicade too quickly right now (she is only getting relief after an infusion for about 10-12 days)
Wondering if any of your kiddos experienced the mouth sores, and if so, any successful treatment to help alleviate her pain?