Hstcl

[michelle222]

Ok, so I apologize for all of my posts lately but I feel like I'm losing it. I just went off 6mp after 2 years after finding out about the risk of HSTCL (which I thought was only associated with biologics or I never would have taken 6mp). I'm a 28 year old female. I have been having a feeling of fullness in my upper left abdomen, which is not where my inflammation is. I have been hysterical off and on for weeks convinced I have HSTCL. How would I know I had it? I feel like I'm going to spend the rest of my life worried that I have this illness.

 

[rollinstone]

They'd usually pick it up through changes in your bloods wouldn't they? Hence why most people are so closely monitored

 

[michelle222]

Hi everyone,

I just wanted to apologize for the frantic post above. I just re-read it and I sound pretty unhinged. I am not sure what's up with me lately, but I am in a very bad head space with this illness. Ever since determining that 6MP alone can cause HSTCL I am so petrified that I have it. I keep ruminating over it and now that I have this pain in my left side it's all I can think about it. I have since discontinued the 6MP and am currently on 40 mg of Prednisone as my only medication...that's probably not helping me psychologically either. I've had this disease about 3 years and I'm trying to convince myself it isn't a death sentence, but I am struggling.

 

[Essieluv]

It's ok to be upset about having Crohn's. But you can't let it run your life, as much as is possible. Crohn's is not a death sentence; we Crohnies can do anything we want to do, just like healthy humans. Yeah, we get sick, but we are also pretty awesome. Hang in there!