Humaria, emotion and education

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Joined
Apr 14, 2011
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6
Hi,
After coming back from Mayo-Rochester 2 weeks ago my 23 old daughter started on Humira last week. After talking with her GI ( for 2 hrs of questioning), he said it can take several weeks before she will feel any improvement. Even knowing this she has been sinking into depression. She has lost 25 pounds and can not eat without becoming sick. She is fortunate enough to have her brother 25yrs old with UC that helps her with understanding what she is going through. It is so difficult to watch this happen and know there is nothing I can do except lend a helping hand. It is at these times I, as the parent want to take out the "magical wand" and make it disappear. It is so difficult for me to keep my tears back when my children are in pain and emotionally torn apart. The good days are great and I try to stay strong...but at night... when I am alone, the tears come anyway...and so do the phone calls to yet another trip to the ER. I do not think I have slept a full night in a couple years. I read and research as much as possible which offers relief because of knowledge gained. Am I being too overemotional or do others experience some of the same things? Your input would be greatly valued.
Thankyou.
 
Hi times2!! Sleepless nights and a strong desire to make it all just go away are our trademark around here!! You are not alone! Welcome! I guess you've seen the Humira club by now, but if not, there are some amazing stories of transformation on there. I wish for the best for you and your children!
 
Hi again times 2, :bigwave:

Are you too overemotional? Hell no! I don't think I would be out of place in saying we all know exactly what you are feeling and thinking, what your fears and anxieties are and the everyday struggles you face. It doesn't matter how old your children are, they will forever be your babies and those feelings never diminish.

I so hope your daughter funds relief with the Humira and in doing so things start to turn around and look brighter. Please keep us posted on how you and your kiddos are doing. We will be here with you every step of the way.

Much love and hugs, :Karl:
Dusty. xxxxxxxx
 
thank you

so i'm not crazy after all. thanks for the supportive notes! I'm not if I mentioned that I am the Mom, caretaker, emergency taxi driver and hospital vacation consultant/private conceirge. (try to make light of our frequent visits by using a little humor). Dad is not involved as far as I know. Has never shown up for any medical situations in the last 10 years. That story is long over and accepted for what it is. Our family continues to use humor and positive reflection to deal with difficult times...but sometimes!!!....things get a little scary...so anyway ...Thank you

Next injection in 2 days for Cort.
Ty remains on lialda, prednisone, & herbal remedies. Suffers from calcium oxalate kidney stones.
 
Ah Mum, many's the time if you didn't laugh you would cry ay? We know all about that here which is why we spend half our time taking the p*** out of each other! :lol:

:hang: You are doing just fine.

Much love, :Karl:
Dusty. xxxxxxxx
 

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