Humira - Side Effects *Newbie!*

[KeithK28]

Hi Everyone !

Great to have a forum to discuss all things Crohn's ! I was diagnosed in 2004, at the age of 14. I developed two abscesses, the 2nd revealed the Crohn's. I was on Asacolon & Imuran, but they didn't really work for diarhea etc. so was moved onto Infliximab. I'm now planning a 6-month stay in China (*I'm from Dublin, Ireland btw!) - so I was recently put onto Humira.

So far, I think the only side-effects I have are:
- Eye sensitivity and sensitivity to light
- Slight headaches
- Fatique

None of these side-effects are debilitating or worrying, but do you think I should ring my hospital about it or do you guys think its normal?

Also, how would you describe your general tummy/bowel pain? I'd describe mine as a sharp stitch in the lower right side of my abdomen, which worsens when pressure it put on it i.e. Sneezing, sitting up from laying down etc. It seems to be people describe the pain very differently sometimes?

Anyway, great to be here. It so comforting knowing Im not the only one dealing with this shit, excuse the pun

 

[al_crohnnie]

Hi Keith,

I've been on Humira for a few months now and have serious fatigue issues. It has helped with other issues I was having... abscess, fistula, weight loss all that fun stuff. But it feels like it takes such an effort just to make it through the day.

I think a lot of folks have your Humira symptoms as well. I don't know that I personally would call a doctor over them because they seem "normal", but it's totally up to you. I'm sure if they progress or become worse, you'll pick up the phone.

Glad to meet you.

 

[nogutsnoglory]

I think it's important to let your doctor know about any unusual symptoms even if they are more common side effects. Let them know you can deal with it but just want them to be aware.

 

[MikeinBklyn]

Keith,

Those "side effects" could be symptoms of Crohn's. I know they were for me.

Good Luck