- Joined
- Apr 27, 2012
- Messages
- 97
Hello there, it's been a while since the last time I was here but I'm hoping I get answers from people in similar situations. I have crohn's disease, I've been diagnosed 6 years ago. I'm currently having the flare up from hell for a week now, the flare up before that started from 3/1 till the end of January. Between of those two flare ups I started to have pain at my right hip joint and they found a bone lesion on CT and MRI both radiologists believe it's benign behaving but it needs to be removed as the two orthopedic surgeons I went to advised as steroid use made my bones weak and I can fracture at anytime. My GIT refuses to prescribe me anything other than paracetamol for the pain because it goes against his ethics and even if he did according to the Egyptian laws I have to take the prescription to an oncologist to give me the prescription that's accepted in state run pharmacies the only ones who stock those painkillers legally in Egypt. They give me the strong painkillers whenever I go to the ER, but I can't stand hospital stays anymore.
I'm on methotrexate, used to be on Remicade but I couldn't afford it anymore, biologic autoimmune drugs are not covered by insurance here.
My GIT want me to have enteroscopy as he believes my small intestines are in a worse shape than they appear on CT. It is only preformed by two doctors in my city and one of them failed to access my colon before because I have a very bad narrowing that only my current GIT was able to get through (He comments every year how it's getting harder and last time he told me when I woke up that he almost gave up, he entered on the last attempt) so that will explain why I'm reluctant to find another GIT. He doesn't want to remove it now also because he believe it's better to delay surgery for now.
I'm sorry I typed for so long, but I feel defeated and battered. I need someone who understand how I feel. I can't do anything anymore but lay down and hope the next cramp wave would be the last. I feel I'm losing everything I worked hard for in my life. I can't cope anymore, my mind cannot tolerate pain anymore. I'm scared.
I'm on methotrexate, used to be on Remicade but I couldn't afford it anymore, biologic autoimmune drugs are not covered by insurance here.
My GIT want me to have enteroscopy as he believes my small intestines are in a worse shape than they appear on CT. It is only preformed by two doctors in my city and one of them failed to access my colon before because I have a very bad narrowing that only my current GIT was able to get through (He comments every year how it's getting harder and last time he told me when I woke up that he almost gave up, he entered on the last attempt) so that will explain why I'm reluctant to find another GIT. He doesn't want to remove it now also because he believe it's better to delay surgery for now.
I'm sorry I typed for so long, but I feel defeated and battered. I need someone who understand how I feel. I can't do anything anymore but lay down and hope the next cramp wave would be the last. I feel I'm losing everything I worked hard for in my life. I can't cope anymore, my mind cannot tolerate pain anymore. I'm scared.
