I could cry right now.

[afidz]

So to start from the beginning, I had started seeing a new surgeon last May, and it was promising. He is an excellent surgeon. However, I had to wait to schedule the surgery for something that I am not even going to get started on. So I waited. and waited. In the meantime, my parents told me they wanted me to go home and find a surgeon there, they wanted to take care of me while I recovered blah blah blah. So. I moved home. I went to see a different surgeon in Chicago and he said it would be glad to do the surgery, I just had to take care of a few things first. Great. well ALL OF A sudden. My parents decide they didn't want to help me anymore. Basically "sorry you wasted 2 months of your time here, but go home" In the time that I spent in Chicago I could of had my stomach fixed already. I haven't contacted the surgeon in Dallas, I am too embarrassed about the situation that I am in. So as you all know, I\ am trying to find a new surgeon. On another note, I lost my job last January and haven't been able to go back to work and Crohn's makes you uninsurable for private insurance. So my dad added me to his insurance at work. I just have to pay him monthly for it (understandable). Well, I am on a very limited income and I still have living expenses to pay for, so I pay my dad on the second payday of every month. APPARENTLY I have to start paying him on the 10th. which doesn't work for me because the rest of my bills are either the beginning or the middle of the month. So I explained that. I am not saying that he isn't going to get his check, it just can't be when he wants it. He told me if I can't pay by the 10th then I am off of his insurance. Basically, I feel so betrayed by dad, I trusted him to help me get through this and I feel like he is slapping me in the face. I didn't ask him to help me, he offered. He can't just take it all back. He's messing with my health, I wish he could just see how bad he screwed me over.

 

[Jennjenn]

I understand your frustration with the situation. There was one thing I thought of that could possibly help though. If you call some companies or whatever bill you might have to pay during the month, you can request for the due date of the bill to be changed. Most companies will work with you.

 

[Jennifer]

I know you're embarrassed to talk to the surgeon in Dallas but I'm sure they would understand. Just let them know that you needed help and had to move back home for a while and are now back and need to have the surgery. Life happens, they will understand.

As far as the income and insurance, have you tried getting Medicaid? If you don't qualify you could try going on disability through Social Security (you can go to your local Social Security office or apply on their website) and receive SSI and/or SSDI for IBD. It takes some time to be accepted so its best to apply sooner rather than later and always appeal if you're denied.

Can't help with the parental issue other than I'm sorry they acted that way. Saying they want to help and then taking it back. That's their own personal issue so hopefully you wont let that get in the way of you getting the help you need.

 

[afidz]

I am in the middle of fighting for SSI, i was denied a few weeks ago and I am now in the appeal stage of it. I hired Binder and Binder to be my advocate so hopefully that works out soon. Unfortunatly their own personal issues will get in the way of my health if they take away the health insurance. I wouldn't be able to get my stomach fixed. I haven't tried for medicaid, from what I read I would get denied, but hey, you never know until you try. I am so stressed about everything right now, I don't know how to deal with it. my emotions are so unstable right now that I pretty much start crying over anything. I just want this mess to be done with

 

[Jennifer]

Once you get the SSI then you'll be able to get on Medicaid for being disabled. You can try getting on it now just based on being low income. I've never used Binder and Binder but have seen the commercials so I hope it works out. Took about 3 months for me when I had to deal with my lawyer and that was just to keep them from taking away SSI. Glad you went the lawyer route. Going solo can be a long process.

Have you had a talk with your mom about what's going on to see if maybe she can sway your dad into a pay date that works for you? I mean they wanted to take care of you after your surgery so they do care, they're just going about it the wrong way right now.

 

[afidz]

My mom is encouraging my dad. She is usually the start of all my problems. I could write a book, I swear. But if she didn't get involved, none of this would be a problem

 

[Ihurt]

I am sorry for what you are dealing with. That is horrible that your parents are being so insensitive to you regarding your health. That is just terrible. It is good you are looking into getting disability. That can help a lot with the medical bills and such. What kind of surgery are you needing? Yeah, do not feel embarssed about going back to your old surgeon. I mean all you have to do is explain things, he will understand. Believe me, he wants your services, he will not turn you away.

I hope you get things straightened out and get to feeling better soon..













QUOTE=afidz;524290]My mom is encouraging my dad. She is usually the start of all my problems. I could write a book, I swear. But if she didn't get involved, none of this would be a problem[/QUOTE]

 

[afidz]

I have to have my abdominal wall reconstructed. I had a colonoscopy a few years ago that perforated my colon, and ever since then I have had problems with hernias and healing. i have several severe hernias that only a very skilled plastic surgeon can fix at this poit

 

[BigMike]

Jesus......


I'm shaken by your Dad. I don't understand his actions at all. The only thing I can say is that use the feelings of pain and betrayal as fuel for your inner strength.

You will get through this.