I don't know what it's like to have Crohns. I don't know her pain. All I can do is try to make her feel better. I try to be as encouraging as I can. I know that with the prednisone, she will have mood swings. I just know that when she speak, she is telling her truth. To see my child go from happy to sad in the blink of an eye just breaks me. She went 8 months complaining of stomach pains and several doctors saying nothing was wrong. Reflux and stress is what they told me was causing the pain. When she was diagnosed, I felt as though I failed her. It took one person to truly listen to get her diagnosed. Someone actually cared to run the correct test and look at them. Not just send us home with a prescription for reflux. I feel so angry and sad at the same time.
I don't know
- Thread starter Ladybug12
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Your a good mom
You did the best you could with the info you had at the time
We have all been there
You don't know what it's like to have Crohns
But you do know what it's like to be her mom
Crohns is simply one disease that she has
Which will get better with the right meds
It's rocky right now
Getting a second opinion will help you and her get there faster
You don't need to change GI
But a fresh set of eyes when you running in circles helps
As far as talking and pred
Pred turns off the filter
So kids really say everything
But mean very little of it
I ignore all pred conversations
It's just the meds
Big hugs
You did the best you could with the info you had at the time
We have all been there
You don't know what it's like to have Crohns
But you do know what it's like to be her mom
Crohns is simply one disease that she has
Which will get better with the right meds
It's rocky right now
Getting a second opinion will help you and her get there faster
You don't need to change GI
But a fresh set of eyes when you running in circles helps
As far as talking and pred
Pred turns off the filter
So kids really say everything
But mean very little of it
I ignore all pred conversations
It's just the meds
Big hugs
- Joined
- Nov 29, 2013
- Messages
- 241
This makes all the difference. Acknowledging that you can't know what she is feeling, but that you are there to listen is everything.
And you didn't fail her - Those other doctors did, and that isn't your fault. You kept looking for answers until you found a doctor who would listen.
And yes, pred is crazy. The mother/adolescent daughter dynamic is already tough, so throwing pred in the mix must be a wild ride. I was older, in my early 20s, when I was diagnosed and had to take it for the first time, and I know I was not always fun to be around...But I am so grateful that my mom was there for me to listen, and to help look for answers - And that is what you are doing, and of course more since she is younger. You're a good mom. Trust that, and take good care of yourself too!
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Try not to feel too bad about what she says on Prednisone. Teenager + Prednisone might be the worst mix ever! My daughter gets cranky, moody, angry, tearful - you name it!
But once she's off Prednisone, she is back to being her regular self.
To give you a sense of how moody she gets -- one time we were at Target, and she was having trouble pushing the cart because it had a bad wheel. I offered to take it from her and she got upset and burst into tears. And cried, in the toilet paper aisle, at Target. For no good reason at all. I think she 18 or 19 at the time :lol:.
Tapering Pred also really helps her - once she's down to about 20 mg, she is back to normal. So hang in there and don't take what she says personally.
Crohn's is a tough disease - try not to beat yourself up. You don't know what it's like to have Crohn's, but it's only one small part of her. She is sick now, but once you figure out the right combination of meds for her, it will take up much less of her life.
The first year really is the hardest. It's a big adjustment, for both of you. Things won't necessarily go back to the way they were, but you do find a new normal.
I definitely agree about the second opinion - it can be a huge help to figure out whether you are on the right track.
Keep listening and keep encouraging her. It WILL get better.
But once she's off Prednisone, she is back to being her regular self.
To give you a sense of how moody she gets -- one time we were at Target, and she was having trouble pushing the cart because it had a bad wheel. I offered to take it from her and she got upset and burst into tears. And cried, in the toilet paper aisle, at Target. For no good reason at all. I think she 18 or 19 at the time :lol:.
Tapering Pred also really helps her - once she's down to about 20 mg, she is back to normal. So hang in there and don't take what she says personally.
Crohn's is a tough disease - try not to beat yourself up. You don't know what it's like to have Crohn's, but it's only one small part of her. She is sick now, but once you figure out the right combination of meds for her, it will take up much less of her life.
The first year really is the hardest. It's a big adjustment, for both of you. Things won't necessarily go back to the way they were, but you do find a new normal.
I definitely agree about the second opinion - it can be a huge help to figure out whether you are on the right track.
Keep listening and keep encouraging her. It WILL get better.
This has been quite a journey. I believe in my heart that it will get better. I know that she is dealing with a lot physically and emotionally. We had a long talk last night and I just wanted to let her know how much I love her and I am here for her. I held her for as long as she would allow.
