I hate Crohns

[Pas55]

Hello all, I've just registered with the forum, though I have been reading it for a few months now. I was diagnosed in July 2011, aged 55. I'd had so many seemingly unexplained symptoms for so many years but was never examined for crohns despite having two cousins with it, a fact I had always told GP's about. Finally, collapsed with perforation last year and spent 10 days in hospital although it still took them 9 days to diagnose the problem! I had I/C resection in Dec 2011 and had been feeling really well until about 2 weeks ago. I am now having pain in many joints and severe tingling,mainly in spinal nerves but also sporadically all over. Doc doesn't seem to think this is connected with crohns but having read some of your posts I'm thinking maybe it is. I have low B12 and regularly have potassium slumps! I am so angry that my GP doesn't seem to think crohns is very serious and that now I have had my expensive! surgery I should be OK from now on. I am still trying to accept the fact that I even have this dreaded diagnosis, before I was diagnosed I seemed to be able to just carry on but now the smallest thing really gets me down. It really helps to know I am not on my own and find your posts really helpful.

 

[mickey]

Perhaps it is internal inflammation that is spreading to other joints or putting pressure on them? Many things happen internally that never seem to make sense, but putting little things together help you understand it better. Stomach bad = usually, backaches....internal inflammation = disease/pain....Good luck on your journey to better health! Keep your chin up!

 

[tots]

Well- I hate it too!

I hate the way I feel having to "prove" to the Drs that I have it. One day I do, the next I dont.
I hate the pain and the way it can rule your life. I have three kids and we lead a busy active life, no time to be sick! The best thing to do- keep on your Drs- you know your body best!

Good luck!

 

[Jennifer]

Do you not see a specialist for your Crohn's? My GP takes a hike where my Crohn's is concerned unless I ask them to do something. Unfortunately once you've already had surgery you have a higher risk of needing it done again in the future so its very possible you could be feeling the beginnings of a flare. Crohn's does affect your joints and your back. Maybe you could have them order some blood work to see if you have any inflammation or any other vitamin deficiencies (this could also be the reason for your symptoms). Your pain could also be arthritis related rather than Crohn's so its always good to be sure. My hips had been hurting for a long time so they did an x-ray and found arthritis even though they say I'm too young for it (29). Just got another x-ray done but for my back as its been hurting as well with tingling and numbness. Chances are it'll be the same thing. Could very likely be Crohn's but we definitely aren't immune to other health problems unfortunately. Hope you get it figured out soon (is a second opinion a possibility?).

Welcome to the forum!

 

[Angrybird]

Hi there, I was wondering the same thing as Crabby about seeing a GI doc regarding the monitoring of your crohns and your new symptoms. It is quite common for crohnies to get joint pain especially if the disease is a bit active so this does need to be looked into properly. Have you been give any medications to take at all since your operation and have you been prescribed anything for your low B12?

Really glad you have decided to join us hun, I hope you feel better soon.

xxx