I left this out of "I'm new to this site"

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THANK YOU SO MUCH!!! ALL OF YOU THAT HAVE REPLIED!!! IT REALLY MEANS SO MUCH!!! One thing that I left out of my story...After finally testing negative for the CDIF/diarrhea infection (still had the vaginal fistula) I was about to be released from the hospital when I suddenly fell to the floor. I WAS UNABLE TO WALK! All I could feel was intense pain but I couldn't command my legs to move. The spinal surgeon ordered some awful and painful test and it turned out I had bone spurs in my spinal cord and needed emergency surgery. I found myself apologizing, to the surgical staff, for the diarrhea. (I actually wore a diaper into surgery!) After they cut out the bone spurs, and sewed up the nick that one of the bone spurs made in my spinal cord, I was told I couldn't move for 36 hours. Since I had asked the doctor not to put in a catheter for my urine, because of fear of infection from the vaginal diarrhea, the nurse wanted me to pee in a bedpan. I'd never done this before and unbeknownst to me when I laid on the bedpan, the only position I was allowed in, the bedpan filled up and dumped onto my back. WHEEEE! So the next time I had to go I thought I would skip the nurse and the bedpan and just gently stand up and pee into my water pitcher. Well, the one thing the doctor neglected to tell me was that after surgery I would still be paralyzed! Since I could feel my legs, but didn't know I couldn't get them to do what I wanted them to, upon standing up my legs just gave out and I fell to the floor. Right after spinal cord surgery I fell to the floor. Then I knew I had to tell the nurse I'd been a bad girl and she'd have to tell the doctor and I'd have to get an MRI. Luckily I didn't damage anything.



Once I was allowed to stand up I had a visit from the physical therapist who was going to help me RELEARN HOW TO WALK! It was the most bizarre time. I had a vaginal fistula and even though the CDIF was gone I still had diarrhea so I'm unable to walk and I'm pooping myself out of a place that could not be more unnatural to poop from. It's been over 9 months and I've just begun to walk upstairs without a cane or railing. Can you imagine the questions I had for God when this was added to my plate? I thought I must have done something so horrible in a past life or something really great must be coming my way. My husband, a Buddhist, said, "Honey, sometimes things just happen." I think he's right. No matter how bad it gets and no matter how senseless it seems I think sometimes things just happen. You get through it. Through loved ones. through friends and through websites like this one. You get through it.



Again, my deepest appreciation for all of you. My life is turning around and I know that a big part of it is you. God bless, Sharon
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Wow Sharon... my you have been through so much, I feel like a whiner in comparison. You are an inspiration for the rest of us to keep fighting, don't let this damn disease take over your life. Kudo's to you!! Such a fighter!
 
sharon j. said:
No matter how bad it gets and no matter how senseless it seems I think sometimes things just happen. You get through it. Through loved ones. through friends and through websites like this one.

Very well said! I hope the best for you moving forward!
 
Sharon - what you have been thru! Your sense of humor is great and no doubt a big help to you thru all of this. A positive attitude is our best medicine.

I once asked my husband (not a buddhist, more of a Spock), why all this had happened to me. He said, "It's karma. You have such a great life, that you have to have some bad stuff to balance it out." I asked, "What about you? You have a great life? Where is your bad stuff?" His reply - "Oh, honey, you got enough bad karma for the both of us."

Keep hanging tough and please keep us posted on your progress!

- Amy
 
Wow! What an ordeal! I'm glad you joined this site and I hope that your future with this disease is easier than your past. I hope that for all of us.
 
Sharon, you told this story with grace and good humour (as the others have mentioned) -- wow! Good for you. Take good care.
 

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