- Joined
- Feb 23, 2012
- Messages
- 180
They are still trying to adjust Kotas medicine. Still no Pentasa.. His tummy seems to fell better being off the Pentasa but it hasn't really made a difference in his heart rate 
I thought for sure it would. Still gotta figure this out. But I am sure we will.
We have been trying to get ready for a Surprise Graduation Party for older son Skyler. We finally had it last night and Yes he was surprised.
Friday night Kota finally felt like going outside and playing. So we went outside for a little while. He wanted to ride his bike. This has always been his favorite thing to do up until he got so sick. He rode his bike for a few minutes and jumped his bike ramp a couple of times. It was so great to see him doing what he loves so much. Had to check his heart rate. It was 185. I told him okay I want you to sit for a few minutes. So we sat outside talking and laughing. Heart rate started to come down. I told Ko why dont we put your bike and ramp up. We can go inside and cool off and watch a movie. He was okay with that. He went to get his bike ramp to put up. He walked up the ramp and jumped off. Well he fell when he jumped. Came down on his wrist and started crying. We put ice on it as soon as it happened. It didnt swell at all. I asked if he wanted to go to the hospital and he said no. He was afraid he would have to stay at hospital again I told him No he wouldnt have to stay. He said he didnt think it was that bad. He tossed and turned all night with it hurting. He finally told me at 3am momma I think I need to go tohospital. So I got up and we went to ER. Well guess what it was broke. I felt so bad that I didnt take him straight in to the ER. They put a cast on it that he will wear for 1 week then we go see Ortho and have another cast put on for 4 weeks. Ugh my poor baby. He cant seem to catch a break.
Dr said to give him motrin. Nope he cant have that allergic. So they said to give him tylenol. I know with him taking tylenol thats going to effect the results of his labs that will be done tomorrow. Still trying to get liver count back under control.
Not sure what it is about Graduation parties that make Ko think he needs to break a bone lol. He broke his ankle 2 days before Beccas graduation party exactly 4 years ago. Then the day before Skylers Grad party he breaks his wrist. I told him Ko when you are fixing to graduate mommys going to wrap you in bubble wrap for about a month. He is all boy. He is the only one of my kids that has ever broken bones or had stitches
I thought for sure it would. Still gotta figure this out. But I am sure we will.We have been trying to get ready for a Surprise Graduation Party for older son Skyler. We finally had it last night and Yes he was surprised
.Friday night Kota finally felt like going outside and playing. So we went outside for a little while. He wanted to ride his bike. This has always been his favorite thing to do up until he got so sick. He rode his bike for a few minutes and jumped his bike ramp a couple of times. It was so great to see him doing what he loves so much. Had to check his heart rate. It was 185. I told him okay I want you to sit for a few minutes. So we sat outside talking and laughing. Heart rate started to come down. I told Ko why dont we put your bike and ramp up. We can go inside and cool off and watch a movie. He was okay with that. He went to get his bike ramp to put up. He walked up the ramp and jumped off. Well he fell when he jumped. Came down on his wrist and started crying. We put ice on it as soon as it happened. It didnt swell at all. I asked if he wanted to go to the hospital and he said no. He was afraid he would have to stay at hospital again
I told him No he wouldnt have to stay. He said he didnt think it was that bad. He tossed and turned all night with it hurting. He finally told me at 3am momma I think I need to go tohospital. So I got up and we went to ER. Well guess what it was broke. I felt so bad that I didnt take him straight in to the ER. They put a cast on it that he will wear for 1 week then we go see Ortho and have another cast put on for 4 weeks. Ugh my poor baby. He cant seem to catch a break.Dr said to give him motrin. Nope he cant have that allergic. So they said to give him tylenol. I know with him taking tylenol thats going to effect the results of his labs that will be done tomorrow. Still trying to get liver count back under control.
Not sure what it is about Graduation parties that make Ko think he needs to break a bone lol. He broke his ankle 2 days before Beccas graduation party exactly 4 years ago. Then the day before Skylers Grad party he breaks his wrist. I told him Ko when you are fixing to graduate mommys going to wrap you in bubble wrap for about a month. He is all boy. He is the only one of my kids that has ever broken bones or had stitches
