I thought steroids would help.

[Starla86]

So 11 days into my 9mg a day Entocort stint, I am feeling lousy. I am starving all the time but when I eat it is starting to feel blocked. I am having pain and my stomach has started to scream at me again. My horrible gas has come back, which was the only thing that the flagyl got rid of for me, and I am sweating like a man and my temper is very short. My dr made this sound like a miracle drug but im not seeing anything of the sort yet. I am still having multiple Ds a day and then energy that I had the first couple days is going away and I am feeling weaker than usual even with B12 shots. So is this a drug that sucks at first then helps later or is this it? The dr also mentioned Remicade and that I could start doing an overnight hospital stay for it every couple of months. Any suggestions? Thanks

 

[chrisnsteph1022]

I'm 15 days into the same thing. I've had no side effects. It took about a week for me to notice a decrease in symptoms. Then I started Cimzia, so I'm not sure which is doing the job now, but I'm about 75% better. I would definitely suggest another drug to take with it, such as remicade. I don't think entocort is used long-term. I plan on discussing a tapering schedule when I go back next month. Hopefully by then, the cimzia will be doing all the work.

 

[Astra]

Hiya Starla

Entocort needs 8 weeks on 9mg, then another month on 6mg, then another month on 3mg for it to work properly. 3mg can also be taken for a further 2 months to maintain. Give it some more time, it does work, I've just finished on it. I have no symptoms at all.
But, is your Crohn's in the small bowel? If it's somewhere else, Entocort won't reach it.
good luck xxxx

 

[bushydougie]

It took a month for me to feel any effect from Entocort. But when it started to work if was great! When I checked with my GI he said that this was normal. When on pred it took 3 days to take effect so there is or can be a marked difference.
I hope it kicks in for you soon

 

[MADiMarc]

Hi Starla! Entocort worked kind of for me. I have Crohns in the large and small intestine. I will tell you I LOVED Remicaid. It worked so well for me for quite a bit of time. Look into the Remecaid sub forum. Much, much info!
Michele

 

[My Butt Hurts]

My doc said he wouldn't put me on entocort because it isn't strong enough. Prednisone always started working for me within days of starting it. I do think you might need to be on some other maintenance med as well.
Did your doc say that you would need to stay overnight for Remicade? I've never heard of that, it's usually a 4-ish hour daytime infusion.

 

[Starla86]

I think that the plan is to only do one month of Entocort at 9mg a day. I just got my blood work back to see if I can handle 6mp and I cant. So she is really pushing Remicade and yea she said that I would do an overnight stint in the hospital for it. I dont know why? So I have been reading about Remicade and hairloss is a side effect and I was wondering if anyone has experienced this. I have long auburn hair that is past my bum that I take such pride in. Ironically I grow it out and donate it. So considering that I am allergic to alot of other meds that she wanted me to try and 6mp is out, are my only options Remicade or surgery?