I'm new here the more I'm informed the better I will feel :)

Crohn's Disease Forum

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Joined
Oct 1, 2013
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I'm 33 diagnosed nov 2012 meds r pentasa 500 mg 8 times a day, entocort 9 mg once daily, prednisone taper ( yuck ) I've had pain off and on for about 20 years to embarrassed to seek help. Last yr it was too much canceling vacation and trips. I'm not sure which stage or kind of crohns I have. I know now that problems could be soo much worse, and my hearts goes out to those with any disease. Ive had colonoscopy , pill cam, barium drink and ct scan. I'll get results on the 10th hopefully I'll understand it. I know life goes on and sometimes I will not be able to do everything I want. My fear is pain and surgery. Any one have advice. I've read some of your stories and it helps tremendously with my emotions. So thank u for your stories. No pain today lots of diarrhea. Usually symptoms r for a few hrs, this flare has gone on for 6 days now. Hopefully good news soon. Some how I am still able to work and thank goodness I work with people who understand or seem to be supportive. Thanks for reading ;) feeling better about joining this group.
 
Hello Smartjweir and welcome to the forum :).

Goodness 20 years is a long time to be having symptoms, I only recognised my symptoms after I was diagnosed I thought my problem was of a girlie nature (sorry gentlemen for tmi), I'm glad now that you are getting something done about it. You've had plenty of tests so hopefully on the 10th you'll get some good info and a treatment plan worked out.

The forum is a fantastic place to come for info and support, you won't be short of either here :). A good starting point would be checking out the info on low residue diet on the forum wiki, after that, well there's is just so much good stuff is difficult to know where to direct you to.

Good luck on the 10th, please let us know how you get on. :ghug:
 
Thanks I have learned a lot from the people on here. It's good to know I'm not the only one. :) I'll look up that low residue diet. Lately I feel like I'm starving.
 
I can remember feeling very isolated at the start, no-one to talk to about things cos I felt my family were fed up listening to it all. But my feelings changed when I joined here, I hope you feel that too.
 
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Hi there, and welcome,
I hope all goes well for you on the 10th. I will be thinking of you. I was only diagnosed with Crohns a few years ago, after many years of pain and dia... I understand your reluctance to see about it, as it is one of those subjects you do not really want to talk about!! It will take time to get the right meds for you, and then you can look forward to feeling much better.
I am currently on Remicade infusions, every 8 weeks, and doing well. Let me know how you are. Best wishes.
:rosette1::welcome::rosette1:
 
Welcome to the forum. I'm glad that you sought out help and have finally got diagnosis and are being treated for it. I hope the test results come back and show that you're doing much better.
 
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