Im scared for my 10 year old

[crashnclay]

Hey there this story helped eaised my nerves my son is 10 and was diagnosed with Crohn's disease in December 2011 Its been a struggle but we cope he had a fistula and thats how we found Crohn's. My family is noting but autoimmune My mother aunt grandmother cousins all had lupus RA you name it. He has resently formed another fistula and they want to give him a bag so that area can heal. I want him to not be in pain but I dont know how he would react to it either. Im getting ready soon to sit down and talk with him about this it always helped to talk with him first when any surgery would happen he seemed to cope with it better cause he knew what to expect. Im so scared right now. I hate my baby going through this They also had another option which he has had before and that is a track band to keep the area open apparently it didnt work the first time so im stuck give it another option to heal or put on a bag this is very tough for a mama.

 

[james's mum]

Hi,
We have a 11 year old son with crohns and perianal fistulas. He had a golf ball size one removed in November last year and has now developed 3 more abscesses. He has had 2 draining setons in now for about 6 weeks, had a few problems here and there but over all not to bad, though I doubt they are going to do anything. He has crohns in the mouth, small bowel, large bowel and perianal fissures and fistulas and currently on Imuran 75mg and 2nd time with a liquid diet of Ensure Plus. Saw the GI Doc. today said they now think he will have to go on Infliximab (Remcide) as well as the Imuran. Have they suggested the remicide from what I have read it is supposed to be good with fistulas.
I really hope you do not have to go to the bag for your son but as we have always done with ours, honesty seems to be the best way to go.
I wish you all the best of luck.

James's mum.