Im so angry

[shazzy]

Hi everyone, I feel angry a lot of the time. I tell people I have developed toretts , I have such a potty mouth now . I also blame the drugs. :ylol:I feel at times the pain is unbearable and I don't want to live my life like this. Even though I know a lot of people are having a harder time than me . I was only diagnosed 4 months ago with Crohn's and have since had a major flare and now have Rheumatoid arthritis . I find being around positive people helps & having a good laugh . But some days I find it hard to be brave. Thanks for taking the time to read my rant xxx

 

[Clash]

So sorry you are in this position. Feel free to rant away!! I get so angry sometimes at the things my son may have to face so I totally get it! Just wanted to send some support your way!!

 

[shazzy]

Thank you Clash, I get so angry that Children have to go through this . Im 45 & grateful my daughter is 25 and can take care of herself , but fearful she may develope this too. So sorry to hear about your son , I hope they can get his meds right & that he will be feeling better soon . xxxx

 

[Clash]

Ahh he is definitely on the right path just finding the right adjustment with his Remicade. Wow...25 my oldest is 19 and it just seems to fly by! We blink and they are grown! Hope you are feeling well real soon!!!

 

[shazzy]

Clash,

If you need someone to rant to feel free to rant to me anytime . Im off work on medical leave which sucks big time. Happy to chat & offer support. Must be so hard to see your son go through this . Big hugs

 

[Clash]

Aww...thanks you too! Nothing like a good rant/vent to destress the day!!!

 

[william4]

i think i know how you feel, my 10 yr old dx 8/12,,,,i'm sick over it. its all so new, i feel like i'm trying to get a medical degree in 2 months, and when i read about some of the treatments , i feel even sicker. it just seems so unfair. i'm having an incredible hard time getting a handle on this.

 

[Clash]

William, sorry to hear about your son. It is quite overwhelming in the beginning and your emotions tend to run the gamut. I was so thankful to have found this forum as we were dealing with my son's dx. Please check out our parents of kids with IBD forum as there are some great people there with wonderful advice and support.

Also if you browse through our treatment forum you can read about others and their experience with the different treatments for CD or other IBD. The diet and supplement forum also has a wealth of information.

It is so much to get your head around, all of us go through a period of grieving and loss for our kids "carefree childhood" and also our inability to take away the pain and illness. Eventually, things even out the treatments do their job and it gets better.

I hope you little one is feeling better real soon!!

 

[MojoRisin]

Shazzy I was diagnosed when I had my 1st flare up on 7th Feb 2009 then I couldnt afford the meds at $295 as the Gastroenterologist at freo hospital kept giving me a Private Script so as I couldnt afford the meds as sumtime past on the 1st August 2011. I Had my 2nd flare up which put me in a Critical condition & I almost died as my intestines flared up so bad my intestines burst open & I lost about 7 feet of my Small & Large intestine & the Illecoceal valve, so now I live with Chronic Diahorrehia , I took 16 months off work as l had no control of my bowels as they. Would open 45 times a day at first they tried me on Questram lite which made it worse so I used to take 9 sachets a day & all this did was clean me out & leave me Dehydrated no matter wot I ate straight thru , then they tried me on 4 x 30mg tablets of Codiene phosphate which Dr Pearce said I could live on & he told me in December 2011 that he made an appointment for me to the incontinence centre & it took 12months til I got an appointment as mr pearce forgot to fill out the paperwork, Ive been getting 200 x 30mgs of Codiene from my GP every month for the past 12months as Ive been waiting to see Dr pearce for him to give my GP an Authorisation so I can get a Govt health script of codiene so then it will cost $32 a month instead of $85 a script, I have accepted that I will always have Bowel. Problems. & that my social life is non existant as if I drink I must wear a Nappy & carry spares witg me & spare clothes in my car but I guess thats Life

 

[Laura44]

Shazzy I can relate to your story and I hope things are getting better. I am 44 and was diagnosed 4 months ago as well - it is SO overwhelming for sure. I have a 21 year old and 15 year old sons that I worry with as well....I would be devastated for them to have to go through all this.

MojoRisin - YOU have been through SOOO much and sounds like you have a great attitude.

Hang in there - glad this group is together and can have friend to turn too.

Blessings for good health!