Imuran & colonoscopy

[Zootini]

Basically ive been told by my speicailist a few months ago that they would like me to start on imuran, they told me to have a think about it and we'll discuss on next appointment whether i would like to be on it or not. So next appointment comes & they now turn around and say they would like me to hve a colonoscopy 1st...although they didnt mention it before. They have kinda backed me into a corner i feel, it seems to me its either have the colonoscopy & get the imuran or dont have it & stay on pred(which i have now been on for 9months! & im only 17!). Thing is i really dont want to have the colonoscopy for various reasons, what shall i do?! Colonoscopy isnt really an option for me, ive had it done in the past but as i am now on the adult ward things are different. I had a very bad experience with one whilst i was in hosp. Did anyone else have to have a colonoscopy prior to starting imuran? I dont really know what to do! Pred isnt working at all for me & i feel absolutley at the end of my teather! I made it quite clear to them in clinic i wasnt comfortable with this. I have my appointment booked(which i will hve to cancel) but that isnt even until aug 23rd, then have to wait for results, then for imuran to work! Wont even be feeling better til like october!!!!! :yrolleyes: sorry for the longness! Just dont know where else to turn!

 

[Grumbletum]

Oh dear, sounds a bit like emotional blackmail I've just been prescribed Aza ( Imuran ), based mainly on the results of a CT scan. Have not had a colonoscopy, but I believe that is cos my Crohn's is in the terminal ileum where the scope won't reach.
I'm guessing the colonoscopy might be because of the location of the disease and perhaps because it's been a few months since your last appointment and there may be changes to your diagnosis?

 

[Zootini]

Yeah thats how it feels! I know its probs just so they can check etc & it may sound like im making a big deal, but i just really dont feel comfortable with it & am feeling kinda sick of people trying to tell me what to do with my body! x

 

[Grumbletum]

I hear ya! The feeling that your body is out of control too is not nice. Last time I felt this helpless is when I was pregnant!!
I know I've not had one, but if they say you need one, it might be better to have it. This bloody disease can develop so rapidly.
Do you have somebody to talk to about your concerns? Is your GP sympathetic? X

 

[Zootini]

mmm..i just dont understand why they didnt tell me anything about it when the meds were first mentioned. Yeah i can talk to my mum & boyfriend, but still hard to explain what your going through unless you've been through it. My doc...well not really very sympathetic, considering i did say how uncomfortable i was with the whole thing, as i said i feel as though im left with no options or say as to whats happening! X