Imuran, Entocort, and Pamine

[natatak227]

Hi all!

Recently, I was put on Imuran to help control my Crohn's. Since it hasn't really started to work (just been on it 1 week) and I'm in terrible pain, my doctor also put me back on Entocort 90mg and Pamine. Both of these medications I've been on before and haven't seen results.

Just wondering, is anyone else on Entocort and Imuran together? How are they working? Will I be able to come off the Entocort eventually?

Also, the Imuran is doing strange things to me! I get facial tingles and my limbs seem to fall asleep very fast. My ankles are also like tree trunks now! My doctor doesn't seem to think the Imuran is at fault, but I didn't have these symptoms before.

Thanks for you help!:sign0085:

 

[NikiB]

Hello!
I was on Entocort and Imuran at the same time as well. Eventually I was tapered of the Entocort and now Im just on Imuran for maintanance. I've been on Imuran for 9ish months and Im in remission, so it seems to be working for me so far. You should eventually be tapered of the Entocort too. It's not for long term.( I was on it for 3 months.)
As for your facial tingles and swollen ankles, keep an eye on that. Even though your doc doesn't think its related to Imuran; everyone's body reacts differently to medication.

 

[natatak227]

Thanks!

 

[Since13]

I actually just started both Entocort and Imuran this morning.

I have had Crohns for 25+ years. I have never really been on any meds except Imodium. Never on sterroids. But I have been operated twice.

Feeling OK but doctor feels I should be on these 2 meds as he sees markers in my bloods that indicate disease is coming back.

Anyone having side effects with these pills. Its the 1 thing thats scaring me right now.

 

[Aura]

I'm on prednisone 80mg amd 100mg Imuran/aza - I am in my third week now so I am in the early stages of adapting to the drugs. So far I have had one big spot on my face :frown:; I am waiting for my face to "moon" on the prednisone. I have diabetes so my blood sugars have gone through the roof and now they are being managed closely by my nurse. I am awake at 3:30 in the morning after going to bed at 11:00?? no doubt the pred again. My crohns is having a bad flare, but I also cant afford to get constipated on the the pred or pain killers so I use lactulose to keep me moving - I have tended to be a consitpated crohnie. With the Imuran they comments about keeping protected from the sun are worth a mention. Without a good sunscreen I get a red rash on my exposed limbs after a few minutes in the sun. Good luck on your journeys

 

[natatak227]

I hear you about the prednisone moon face. I was on 60mg for 6 months and moonface was pretty bad. But, it didn't really start until I was on it for about a month.

I hope for you that the meds work and that moonface will stay away!!!

Is the rash from the Imuran instant when you go in the sun? My husband and I are planning a trip to the beach over the next few months, and I definitely want to be able to go out and swim in the ocean.

 

[Aura]

Yep it is definately from the sun and it did not take long for me get a rash. I would suggest 50+ or 30+ sunscreen, sunhat and cover what you can. From what I have read here these skin reactions to appear to be common, but can be avoided with good management -and then you can enjoy the holiday as well

 

[tots]

I am only taking Entocort. I was in the hospital for 7 days. During that time I had IV steroids every 4/6 hours. So I think I had a "head start" on the Entocourt. But, I have noticed a difference. Now if I could eat a big salad, that would be awsome! My Dr said I will be on this for 6 months. I don't know what happens after that and that makes me uncomfortable. I like to be able to look ahead and plan, the unkown or unplanned gives me just a touch of anxiety! :yrolleyes:

 

[heidit68]

Hello there, I am on Imuran & Entocort taper. It takes up to three months before you will know if the Imuran will work as a maintenance drug for crohns my gi dr says. I just took my last dose of entocort tonight & am on my second week of Imuran. Since the Imuran makes me feel like crap o la I take it in the evening & sleep through most of the yuck The entocort stops my crohns flares and I hope that the Imuran makes it so I don't have to keep going on the entocort within two weeks of coming off it. I hope it works out for you too! Hang in there

 

[Miss Underestimated]

I was on Entocort for about a year with no real problems. I went through a couple of weeks when I was shaky, but that was about it.

 

[Since13]

Started Entocort and Imuran 4 days ago. Right now I feel like crap. Not sure if its the meds or the Crohns. I was OK before taking it but now I have big time diarrhea, very nauseous and have not been able to sleep for 2nights. So far not a good experience. Very depressing.

 

[chrisnsteph1022]

I'm on Entocort and Imuran (and Lialda and Remicade). None of it seems to be putting me in remission, but I'm loads better than I was. The plan is to stay on the Entocort for 2 months (one month at 3/day, 2 weeks at 2/day and 2 weeks at 1/day). I was hoping to come off the Imuran eventually, too, and just do the Remicade. I have to get in remission first, though.

 

[ComaGirl]

Interaction Warning

Thanks for posting this information. I just got put on Entocort today and got to reading the fine print that there could be interactions with my Imuran. Glad I'm not the only Crohn's patient on both.

My gastro says Imuran doesn't cause fatigue. My primary though says anything is possible and nothing should be ruled out. My vote, the primary is right. I do struggle with fatigue on the Imuran, but I've been on it less than 3 months.