In remission (I think?) Really bad gas.

[Dereksmagic]

So I have been fighting to get over my first run of being flared since I first got diagnosed with it. My last colonoscopy showed that all my ulcers are gone, and the inflamation is down. Other than a ton of scare tissue. I am better. (Thats what my doctor said) Im still taking my balisalizide, remicade, 6mp, and iv been moving from 12 oxy contins a day down to 4-5 percocets a day. (H3LL!) But I am still laying around with a ton of issues, still have to be by a bathroom, still get the urgency to go, no solid stools yet, and I have horrible gas all the time, and what I eat still doesnt seem to change that. And the gas is really uncofortable, (Not talking about gas after a procedure) That was a while ago, But I always have to use the restroom cus I dont know if it is gas or $hit. Its been over a year and a half, I still have no energy to do anything, Im not working, I dont leave the house anymore beside a couple times a months when I get fed up and force myself out of the house. I try and work out at home but have absolutly no energy. Ill get a random spout of energy like one day out of the month, but other than that. I am up all night from my meds, Sleep till 2pm, wake up and go right to the couch and im out of it all day. Im sick of being "sick" (Or healthy?). I dunno.. Im pretty lost right now.

Is this pretty much my life now? Anyone have some advice?

-Ill add more later on. I cant seem to be able to concentrate now that Im trying to type.

 

[nogutsnoglory]

It doesn't sound like you are in remission at all and maybe your doses and meds can be adjusted considering how you feel. Can you try gas-x for the gas pain? Before my ostomy I couldn't tell if it was gas or poop and that's annoying as hell.

 

[Zeppy321]

You said you have a ton of scar tissue - I believe only surgery will help with that. Sorry. Hope you feel better soon .