In the Hospital - Questions

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Hi fellow Crohn's Members...

I am currently in the hospital as a result of repeated and uncontrollable diarrhea, mucus, and blood. Immediately after eating, cramping followed by diarrhea occurs even on the max does of Lomotil (8 tablets per day) and 40mg Nortriptyline. Still having pain after each meal. A colonoscopy was performed yesterday and the only identifiable inflammation was proctitis in the colon, still waiting on biopsies from throughout the colon to rule out non-visible inflammation elsewhere. Attending doctor and fellow do not seem to think biopsies will show additional inflammation. Have me on 40mg steroid taper and Canasa suppositories. Preparing to send me home today.

Prior visit to the same hospital in Fall 2012, sigmoidoscopy showed inflammation in the sigmoid colon with thickening in the folds of the colon shown on the MR Enetrography. At that time a different Attending and Fellow gave the diagnosis of Crohn's based on the the thickening of the folds they saw in the sigmoid colon. Went from steroid taper to Uceris maintenance dose at that time.

This is made more difficult that the IBD specialist who has been my doctor since April 2011 recently moved to a different state and clinic. Anyone have similar experience or any questions I should specifically ask the current attending and fellow?

Thanks!
 
Hi whyclef,

My experience has been different than yours (my Crohns is all in my small intestines), but I wanted to send my support and hope that you are feeling better. Hopefully other with similar experiences to you can help out with any suggestions about what to ask.

Maybe ask about maintenance meds and the plan if your current treatment doesn't put you in remission?
 
I have Ulcerative Colitis along with a more direct diagnosis of Ulcerative Proctitis. A former GI of mine diagnosed me with Crohn's. But, my current GI saw UC along with UP when he did my flexible sig last year. My current GI will be doing a colonoscopy in Nov for himself to see what's really going on with me. I would continue with the info from your current doctor.

I too would ask about maintenance meds & a treatment plan.

Where exactly the inflammation is right now and what to keep an eye out for. (my inflammation being rectal is crucial to keep a watch for possibly spreading into my lady parts)

Any other info you might need about this diagnosis.

Feel free to PM me if you have any questions. Please keep us updated.
 

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