- Joined
- Jun 6, 2017
- Messages
- 6
Hi there! Im a newbie! My 6 year old daughter was diagnosed with UC pan colitis 2 1/2 years ago. She was put on Pentasa and did great for about a year and a half although she still had bellyaches and had to watch what she ate. Then, she had a flare. We did 2 months of steroids and added 50mg of Imuran and monitored labs closely. She suddenly was able to eat whatever she wanted with no bellyache. Her stool has been completely normal for almost a year now flare free. He recently took her off of the Pentasa since the Imuran is working so well. He does labs now every 3-4 months and she has been great. He recently checked her 6-mp metabolites. I got the results yesterday and it shows she is way below theraputic level so he wants to increase her to 75mg. I am having a lot of anxiety about it because I already dont like the idea of her being on Imuran because of the cancer risk. He said there is a lower likelihood of the medicine working and bigger likelihood of a flare if she isnt within theraputic range. She is just so tiny for such a high dose. She is right at 40lbs, so 75mg seems like so much. He explained that her body is processing the drug well and thats why her level is low. Anyone go through this? Anyone want to ease my mind a little? :sign0085: