Inflammatory Bowel Disease Study at Mount Sinai

[Cwaily]

NEW Online Study for Couples Coping with Inflammatory Bowel Disease
at Mount Sinai School of Medicine, New York, NY​

We are interested in learning about how couples cope with Inflammatory Bowel Disease (IBD). If you are an IBD patient or the partner of an IBD patient, we invite you and your partner to participate in a confidential, online survey for couples coping with IBD. You are eligible to be in the study if:

• If you are married or marriage-like relationship
• If you or your partner has been diagnosed with ulcerative colitis, Crohn’s disease, or indeterminate IBD (that is, it is unclear whether your IBD is Crohn’s disease or ulcerative colitis). The diagnosis must have been made by a medical doctor.
• If both you and your partner are at least 18 years old
• If both you and your partner speak and read English
• If both you and your partner are willing to participate in the study by completing the confidential online survey

This study is being conducted at Mount Sinai School of Medicine in New York, NY. It is completely voluntary. We will not ask for or gather any information that could be used to identify you (for instance, your name, address, phone number, birthday, etc.). No compensation is offered.

If you’re interested in hearing more about this study, contact Christine Rini at (212) 659-5555 ([email protected]).

If you and your partner are eligible because you meet the description above, and if you and your partner know you would like to be in the study, you can join it by going to the survey website:

http://tinyurl.com/IBDStudy​

(GCO# 03-0141, IRB approved through 08/31/10.)

 

[kello82]

too bad i am not married or in a married like relationship!!!

 

[fromthegut]

I'd like to meet the amazing partners of the patients with IBD. it is ahrd having an illness but to be the supporter must be incredible. That's actually what i would like to learn more about. How to ask family and friends and future partner for help. Or to accept help. I am not good at receiving. i generally take care of ymself and become very isoalted. I am actually not sure my family would help. Actually soem of them are proably waiting for me to ask.
Hmmm... as a person with IBD, what would you ask for from your family, partenr and or friends. I guess some where deep inside me says I don't deserve the help that I have to do it on my own.