Introduction- New to forum but not to Crohn's

[Keepingfaith]

Hello! You guys may recognize my username from Healingwell. I am just looking for a new forum with more...Mature people. I am 15 & was diagnosed last year in October. Like most of you, it took a while for me to get diagnosed. I have been seeing a GI doctor since I was around 2 years old. I used to go to the ER nonstop for back to back fecal impactions & after a scope at age 4 I was told it was "just constipation from IBS". I have had several "mini flares" since that time but when I got my Gallbladder removed at the age of 13(I was the 2nd youngest in the hospital's history) everything just went crazy. Apparenty I was septic & immediately after surgery I felt like my joints have been ripped apart. I went from doctor to doctor to find out why I was sick & I was told it was 'Mono'. That "flare" went away after 6 months but in February 2011 it all came back & then some. Several scopes & tests later, I got diagnosed with severe Crohn's. I have lost 90 pounds this year & I can't seem to get this never ending flare under control. I was hospitalized for a month in late October & it was miserable to say the least. Hopefully, at my GI appointment soon, we will talk further about meds. My Crohn's affects my mouth, esophogus, stomach, ileum, all of my colon & rectum. My scope in April showed active inflammation in stomach, ileum, all of my colon, & rectum. I am very active in my CCFA chapter & will be a camp counselor at Camp Oasis this Summer If you live in the Southeast United States, you will probably see me at a lot of CCFA events & at the Camp Oasis in Georgia! I look forward to supporting everyone, learning from others & offering advice to those who need it
:ghug:

I have tried:
Remicade- I got drug induced Lupus after a few infusions
Asacol- Couldn't digest pills
Apriso- Didn't do much
Canasa Suppositories- Did nothing
Steroid suppositories- I rotate with these every few months
Prednisone- I couldn't digest the pills & only lost more weight. I had to receive the IV prednisone.
Flagyl
Cipro

Currently on:
Humira- weekly
Sulfasalazine
Vitamin D
Fish oil
Zinc
Folic Acid
Vitamin B12
Zantac
Prilosec
Probiotics
Noritriptyline

 

[vickie_x]

Hey! Sorry to hear you had such a rough time getting diagnosed. I was pretty lucky that it only took me 5 months after I started showing Crohns symptoms to get the scope that gave me my diagnosis. However, I had generalized symptoms from my early teens that my mum believes could have been related - hindsight and all that!
I'm really jealous that you're going to Camp Oasis - I wish we had a summer camp like that in the UK (or if we do, I need to find it!). It looks like so much fun and with people who understand

Hope you manage to get things sorted and on track at your next GI appt :hug:

 

[ScorpioLibraChild23]

Hey, I am sorry for what you have been through.I am 13 yearsold and have been officaly diagnosed with Crohns for about 4 months and have already had a surgery because of it. I am on Remicade right now (I have had about 4 infusions of it so far) and I dont know if its working because of the antibiotics I am on right now are making it very hard to tell. I have told my friends that I have crohns but they dont know anything about it. And i really dont want to explain why I have to go to the bathroom so much. Hope you feel better.:ybiggrin: