Is anyone that has crohn's my age?

Crohn's Disease Forum

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Joined
Jun 24, 2012
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Hi! I'm new here, and I don't know anyone, and I've also always wondered; Is there ANYBODY out there that has crohn's, and is my age? (btw, I'm 11) :sign0144:

My story: I was diagnosed with Crohn's disease last year after going through nine months of pain. It started out with chest pain and ulcers in my mouth(the chest pain actually turned out to be an ulcer) that lasted about a month, (I found the right antacid) then for some weird reason my stomach would hurt EVERY SINGLE MORNING, then I lost my appetite, along with 26 pounds, so the doc finally diagnosed me with Crohn's after tons of labwork, a colonoscopy, and an EGD. Now I'm on Remicade, (infliximab) and doing fine!
So, if you feel like someone is stabbing you in the chest every time you swallow, have lots of ulcers in your mouth, if you're losing your appetite and losing weight, I strongly suggest Remicade. (unless your doctor doesn't want you on that) and try to avoid: spicy foods, anything that has tomatoes in it, and anything that usually gives you an upset stomach. :poo:

Oh, I forgot to mention, you get Remicade through an IV. The frequency at which you get it varys. I get it every 8 weeks, and I"m actually getting it next Thursday!
 
Hello! Welcome to the forum!

It looks like you are the youngest member on the forum. There are a few teenagers that hang around the forum though.
I am glad you are in remission! That's fantastic! There are a ton of people on the forum who have had this disease for a long time. If you ever need advice, there are a great bunch of people here.

I see you are from Georgia! I am from the south and will be a camp counselor at the CCFA Camp Oasis summer camp for children with Crohn's Disease. The camp is in Georgia. Are you going? Would be great to meet you!

I private messaged you, by the way.
Take care!
 
Hello and welcome to the forum :ybiggrin: It is great you have decided to join and I am really pleased you are doing well on the Remi, if you have not already had a look please do check out the subforum dedicated to this med especially the club thread so you can havd a chat with others who are also on this: http://www.crohnsforum.com/forumdisplay.php?f=58.

There are a few others here around your age so do have a good nosy around the forum and you should hopefully find them.

AB
xx
 
Thank you! :redface: And I'll be sure to tell my parents.

you sound very educated and mature about your diagnosis. I am new to this forum and I have had crohns since age 14 and am now 37.Continue following your doctors advice and keep up with all of your routine meds. you seem very brave to me
 

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