Hello!
I am looking for HELP! In September I noticed that my stool was consistently soft (at it's best) and from there progressed to upset stomach, then to stabbing pain every time I ate, then to HORRIBLE episodes of upper stomach pain, that started lasting only hours to now lasting as long as 7 days. After a colonoscopy, and endoscope, a CT, and a Capsule Endoscope, blood tests and stool tests. The only results from these tests were some inflammation in my intestines, a couple fissures (I believe this is how its pronounce), a fistule, and an elevated level of white blood cell count (indicating inflammation?). My G.I. thinks that it may be the beginning of Crohn's; however, says that none of my results are definitive enough to know for sure. I just finished a round of Cipro, which helped with the stabbing pain when I eat; however, I still get sick everytime I eat and I am still having the horrible episodes of pain. My doctor is currently waiting to review the capsule endo; meanwhile I literally cannot work when these pain episodes come on. I have had numerous medical problems in my life (including a brain tumor, with brain surgery; a shattered wrist (2 plates, 14 pins), 5 knee surgeries, 3 eye muscles surgeries (brain tumor causes me to have double vision); however, the only time I have felt pain worse than this is when I was waking up from brain surgery! I swear it seems that my doctor IS NOT taking this as seriously as it appears it is to me! It is literally debilitating when the pain comes on.
Any advice on pain management while I wait for the doctor to figure this out? Any advice period?
Thanks so much for all that reply!
I am looking for HELP! In September I noticed that my stool was consistently soft (at it's best) and from there progressed to upset stomach, then to stabbing pain every time I ate, then to HORRIBLE episodes of upper stomach pain, that started lasting only hours to now lasting as long as 7 days. After a colonoscopy, and endoscope, a CT, and a Capsule Endoscope, blood tests and stool tests. The only results from these tests were some inflammation in my intestines, a couple fissures (I believe this is how its pronounce), a fistule, and an elevated level of white blood cell count (indicating inflammation?). My G.I. thinks that it may be the beginning of Crohn's; however, says that none of my results are definitive enough to know for sure. I just finished a round of Cipro, which helped with the stabbing pain when I eat; however, I still get sick everytime I eat and I am still having the horrible episodes of pain. My doctor is currently waiting to review the capsule endo; meanwhile I literally cannot work when these pain episodes come on. I have had numerous medical problems in my life (including a brain tumor, with brain surgery; a shattered wrist (2 plates, 14 pins), 5 knee surgeries, 3 eye muscles surgeries (brain tumor causes me to have double vision); however, the only time I have felt pain worse than this is when I was waking up from brain surgery! I swear it seems that my doctor IS NOT taking this as seriously as it appears it is to me! It is literally debilitating when the pain comes on.
Any advice on pain management while I wait for the doctor to figure this out? Any advice period?
Thanks so much for all that reply!
i am so sorry you need to be joining us. We will however do our best to give you support ,advice ,understanding and friendship. I also think it sounds like crohns , yes tzvia is right prednisone should help. Try and ask for some off your doc. If your not happy with how your doc is dealing with you, then do look else where for one that takes you seriously. This disease cannot be left to its own devices while they faff about. Love n best wishes.
