Hi guys,
I hope you can give me a bit of insight. I had two colonoscopies/endoscopies last year around September/October after i suddenly fell sick and ended up in hospital due to excruciating abdominal pains and pain in the middle of my chest.
The scopes showed quite a lot of inflammation throughout the majority of my GI tract (rectum,colon,stomach). The drs treated me for IBD and i got better.
Then in December, I started getting more symptoms; canker sores, nausea and vomiting, abdominal pains and frequent bowel movements. I spent about 4 days vomiting every thing i tried eating or drinking, even water. I started seeing another doctor who referred me to a specialist for further treatment as i stopped responding to the Asacol they had given me. I started getting mucus when i poop (which conveniently didn't show when I had my stool tested)
Now, with this new dr i am seeing, he is not completely convinced of the diagnosis. He scoped me and there was no inflammation (btw, this was after a short course of steroids after i was hospitalised for 3 days after a flare up) but there was scar tissue and ulcerations. I must add that the specialist dr is like 6 hours away from me so i only see him when i am better, which makes it difficult for him to 'see' me when the disease is active/when i am really feeling unwell.
My blood results show high GGT and ALT and CRP was also a bit high.
I am just so frustrated at the confusion surrounding this and dont know what to do.should i just stick with the previous drs who diagnosed me or should i keep searching for answers at this far away doctor?? i am gonna move to be closer to him in case the illness 'flares up' so he can see me when im bad. but what if i dont flare up???? i dont wanna spend more money on tests. he's recommending a pill cam but i am just so tired of everything. I really just wanna give up.
I hope you can give me a bit of insight. I had two colonoscopies/endoscopies last year around September/October after i suddenly fell sick and ended up in hospital due to excruciating abdominal pains and pain in the middle of my chest.
The scopes showed quite a lot of inflammation throughout the majority of my GI tract (rectum,colon,stomach). The drs treated me for IBD and i got better.
Then in December, I started getting more symptoms; canker sores, nausea and vomiting, abdominal pains and frequent bowel movements. I spent about 4 days vomiting every thing i tried eating or drinking, even water. I started seeing another doctor who referred me to a specialist for further treatment as i stopped responding to the Asacol they had given me. I started getting mucus when i poop (which conveniently didn't show when I had my stool tested)
Now, with this new dr i am seeing, he is not completely convinced of the diagnosis. He scoped me and there was no inflammation (btw, this was after a short course of steroids after i was hospitalised for 3 days after a flare up) but there was scar tissue and ulcerations. I must add that the specialist dr is like 6 hours away from me so i only see him when i am better, which makes it difficult for him to 'see' me when the disease is active/when i am really feeling unwell.
My blood results show high GGT and ALT and CRP was also a bit high.
I am just so frustrated at the confusion surrounding this and dont know what to do.should i just stick with the previous drs who diagnosed me or should i keep searching for answers at this far away doctor?? i am gonna move to be closer to him in case the illness 'flares up' so he can see me when im bad. but what if i dont flare up???? i dont wanna spend more money on tests. he's recommending a pill cam but i am just so tired of everything. I really just wanna give up.