Is it really Crohn's could be Gluten

[feellucky]

I just want everyone to know that we went to 2 highly respected specialist that did every test and said no doubt my daughter had Crohn's. I couldn't believe it didn't have something to do with food. She found a website post that said Crohn's is often mistaken for Gluten allergy. She stopped eating Gluten and sure enough no more pain when eating. I know this may not be the good news for everyone but it's worth the try to see. Don't take everything Doctor's say at face value. Good Luck to you all.

 

[rollinstone]

Most people have allergies to gluten, plz be careful not to go off medication just because she may have no more pain, inflamation can crawl up silently sometimes without symptoms. But yes most GI's knock diet as if it has no role, I think that is far from the truth, atleast for me I know diet has a big role!

 

[kiny]

You need to test her for gliadin antibodies and get a doc to see if she has gluten sensitivity. You can't self-diagnose your own child by looking at a website.

 

[Gra]

It could be gluten sensitivity caused by (or aggravated by) a crohns flare. Or for that matter it could be crohns aggravated by taking gluten. In my case it was the former. I didn't have gluten sensitivity (not to any noticeable degree anyway) until my crohns began to manifest itself.

Gra

 

[Gra]

Most people have allergies to gluten, plz be careful not to go off medication just because she may have no more pain, inflamation can crawl up silently sometimes without symptoms. But yes most GI's knock diet as if it has no role, I think that is far from the truth, atleast for me I know diet has a big role!

I have to agree with Joshuaaa on this.....
Gra

 

[grt73]

I would be unfair to dismiss crohns for your daughters sake, especially if she is on medication for it. I was crohns undiagnosed for many years and went through the you have ibs, you are gluten intolerant, You are allergic to potato bla bla and the list went on. Every time I was told what was wrong with me I clung to it, quite often I believe my symptoms improved due to my mindset. Now I'm not saying your daughter isn't gluten intolerant, for her sake I hope she is:smilewould be a lot easier to manage in the long term) but I did nothing about my disease for 20 yrs, well my docs didn't and I ended up in emergency surgery at the age of 40 and it has changed my life forever.
Please keep an eye on her symptoms, crohns comes and goes as it pleases and smacks you in the nose when you least expect it.
I truly hope it is an allergy and I wish you all the best, keep us posted

 

[UnXmas]

What were the tests that the doctors based the Crohn's diagnosis on?

 

[wild_one353]

less pain does not mean crohns is cured. dietary adjustments can improve symptoms that is all. disease still will remain.

only a fecal transplant may restore the damaged bacteria and cure IBD, which is what new studies in 2014 will discover. in the first study 7 out of 10 achieved remission without maintenance drugs with fecal transplant.

http://www.crohnsforum.com/showthread.php?t=52400

 

[Crohns in Japan]

I just want everyone to know that we went to 2 highly respected specialist that did every test and said no doubt my daughter had Crohn's. I couldn't believe it didn't have something to do with food. She found a website post that said Crohn's is often mistaken for Gluten allergy. She stopped eating Gluten and sure enough no more pain when eating. I know this may not be the good news for everyone but it's worth the try to see. Don't take everything Doctor's say at face value. Good Luck to you all.

You might want to reconsidering self-diagnosing your daughter's condition.

ncbi.nlm.nih.gov/pubmed/15973121

CONCLUSIONS:
Prevalence of celiac disease seems to be high among patients affected by CD, and this finding should be kept in mind at the time of the first diagnosis of CD; a gluten-free diet should be promptly started.

:sign0144:

The "famous doctors" in Osaka / Kyoto area were unaware of this issue until three years ago. (I gave them a copy of the abstract)

 

[Lady Organic]

Gluten is not good for anyone. When heated at high temperature in making bread, pastas, etc, it produces a toxine called acrylamid, which is present in really high quantity in gluten and high temparature (above 115 celcius) cooked corn and potatoes as well. Corn n potatoes should only be boiled and meat too slowly in a sauce pan on stove top.
Acrylamids are pro-inflammatory glyco-toxins and should be avoided for anyone suffering from a chronic inflammatory disease or those who want to prevent such disease.

 

[feellucky]

Thank you all for your responses and good information. I will have her tested for Gluten allergy. She is not on any medications and continues to be sympton free as long as she does not eat gluten products. If she does consume them the symptoms come back. Before she stopped eating gluten she had pain every day. The tests they ran were both scope tests and then a camera test with nothing conclusive. But since she had had a swollen lower GI infection in the area that Crohn's is famous for the doctor felt sure it was Crohn's. Another Doctor did a certain blood test that he said would confirm Crohn's and also said it was Crohn's. She was 20 years old when she had the initial infection and is now 25 years old.

 

[ronroush7]

I have Crohn's but I have been tested and do have a gluten allergy so don't stop with the meds.

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[Chester31]

I thought that my son was coeliac as cutting out gluten stopped his stomach pain and his mouth ulcers disappeared. Unfortunately the scopes showed otherwise - he has Crohn's. Our GI told us that everyone feels better on a gluten-free diet.

 

[UnXmas]

Gluten is not good for anyone. When heated at high temperature in making bread, pastas, etc, it produces a toxine called acrylamid, which is present in really high quantity in gluten and high temparature (above 115 celcius) cooked corn and potatoes as well. Corn n potatoes should only be boiled and meat too slowly in a sauce pan on stove top.
Acrylamids are pro-inflammatory glyco-toxins and should be avoided for anyone suffering from a chronic inflammatory disease or those who want to prevent such disease.

Gluten is fine if you don't have coeliac/gluten sensitivity.

Thank you all for your responses and good information. I will have her tested for Gluten allergy. She is not on any medications and continues to be sympton free as long as she does not eat gluten products. If she does consume them the symptoms come back. Before she stopped eating gluten she had pain every day. The tests they ran were both scope tests and then a camera test with nothing conclusive. But since she had had a swollen lower GI infection in the area that Crohn's is famous for the doctor felt sure it was Crohn's. Another Doctor did a certain blood test that he said would confirm Crohn's and also said it was Crohn's. She was 20 years old when she had the initial infection and is now 25 years old.

I'm not sure that blood tests for Crohn's are ever 100%, there more like a clue that may suggest Crohn's or not rather than a diagnostic test (though I could be wrong on this - I know scopes and biopsies are my doctors' favourite diagnostic tool). Crohn's can affect any part of the digestive tract, and it's certainly not the only thing that can cause problems in any one particular area, so it does sound like the Crohn's diagnosis should only be tentative - but the doctor's interpretation of the infected area may be based on details he hasn't explained to you.

If gluten clearly makes her feel bad, of course she should continue to avoid it, but I don't think you should take that as proof that she does not have Crohn's, nor that she definitely has coeliac. It may well be a good idea to get her officially tested for coeliac. Keep in mind that coeliac tests can produce a false negative result if gluten has not been recently consumed, so she will need to resume eating gluten in order for the test to work. Another thing I'm not sure about is whether an endoscopy should have picked up on coeliac already.

I think in your position I would be asking her doctors for further explanation about their interpretations of test results and the bases for their diagnoses.

 

[DamnitCrohns]

I know that if on a given day I eat a notable amount of gluten (Eg a sandwich or a cookie), my number of bowel movements per day will rise by at least 100%

That said, being strict no-gluten hasn't removed my symptoms, just made them relatively less severe.

 

[Lady Organic]

I know that if on a given day I eat a notable amount of gluten (Eg a sandwich or a cookie), my number of bowel movements per day will rise by at least 100%

That said, being strict no-gluten hasn't removed my symptoms, just made them relatively less severe.

your disease react well to food elimination, you're lucky I encourage you to try eliminating other food categories such as milk products, corn or any transformed food that are all pro-inflammatory. You may notice improuvement in what is left of your symptoms,
all the best

I must add that in all the very few published reseasrch papers of gastro-enterologists who studied elimination diets in Crohn's, Gluten is always on top of the list, along with corn and milk, as triggers to symptoms relapse for a lot of crohns patients. Check authors such as Riordan, 1993, or most recent Dr and professor John Hunter both from UK. In north america, doctors are not yet interested in diets as treatment. Its the phamaceutical that leads the dance.

Gluten is well known to be pro-inflammatory, no need to make a test for that. tests will turn out negative in most cases. Even rheumatologists now start to tell their patients to stop eating gluten. And so did the gastro-enterologist of a poster in this thread. Also an american reputated neurologist just wrote a book called ''Grain Brain'' and he writes about how bad gluten is for the brain and in his opinioin is a catalizer of many neurological diseases such as Parkison, dementia and Alzheimer.

 

[fishylove]

I have Crohn's but I also feel MUCH better when I eat gluten-free. I wasn't on meds(that worked) and tried eating gluten free with crohns, didn't feel better, disease only got worse. The only time I have gotten any sort of relief with crohns is when eating gluten free and doing meds. For me it works.

 

[Gra]

I have Crohn's but I also feel MUCH better when I eat gluten-free. I wasn't on meds(that worked) and tried eating gluten free with crohns, didn't feel better, disease only got worse. The only time I have gotten any sort of relief with crohns is when eating gluten free and doing meds. For me it works.

It was only after flaring with crohns that my gluten allergy became apparent.....


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