It's all hitting me again...

[mascarim]

So I am about 3 months post resection. Bit I'm pretty sure I'm starting to flare again. I am just so sick of all of this I just want to cry. I feel miserable and none of my friends or family seem to understand where I'm coming from and I'm tired of trying to act like I'm okay. I feel rather depressed and helpless and I don't like it. I just wish I could find some relief. It's a Friday night and all I have done is sit in my room and mope and cry.

 

[Hope345]

Melissa,

I am so sorry you are having such a terrible time.
I am a mom of a Crohns daughter and I know she feels that way too. I hope they understand, or care more than you realize.

My heart breaks for my daughter everyday. I want her to feel good again too.

You have been through so much and this disease is so unpredictable. I am so sorry you are starting to flare again. You are NOT alone.

We are currently adding Kefir to her diet, and have heard it has helped some with their symptoms. since you are already using Remicade, it would be a good addition. How many treatments of Remicade have you had?
thinking of you....

 

[mascarim]

Thank you so much! it means a lot. My mom is there for me a lot too but sometimes i almost feel smothered by her. I try to talk to my boyfriend about how I'm feeling right now, but he seems to be scared when i bring up super serious issues or just says its fine, when i dont feel like it is :/ I am currently on my 5 going on 6th dose of remicade. I was doing so well! Especially for having such an agressive form and after the surgery the GIs were all hoping it was gone. I was eating more of the things i wanted to and just fine but the last couple days I have noticed it is starting to hurt again. It's just so frustrating sometimes D;

 

[Manzyb]

mascarim-I'm so sorry you are going through this. I can completely sympathize with you right now. I was a sophomore in HS when I was diagnosed as well. It's really hard being a teenager and being so ill. It feels like no one can really understand what you are going through.

Have you contacted your doctor about your symptoms you are experiencing? I was told it would take a good 6 months to get to feeling better after surgery. It took me about 2 months post op to really be able to eat normally. Diarrhea is very common after surgery as well. I really hope that you aren't just flaring and just having a little bit of trouble.

The disease is so frustrating. I really hope that you get some answers soon. Big hugs to you.

 

[Hope345]

It is hard for us moms to find the balance between smothering and helping... I know I do both too. I try to back off if she is irritable. But there are also times she wants me by her (just in the room.)

I hope this pain is not a full flare either. Dont blame yourself for trying to eat too many types of foods. Everyone is different.

One theory is that Crohns is troubled by bacteria. Bacteria feed off of sugars, especially lactose. Try backing off of sugary foods, and adding in a kefir drink once a week. It cannot hurt.

Your GI should know about your pain. Just see what they have to say. then you can evaluate what you want to do from there.

Your boyfriend is probably scared for you. You do need someone to talk to, and we are all here for you. there is also a chat section that someone is almost always on...

 

[mascarim]

Thank you all. I just hate it because I've been in such a bad mood i seem to be taking it out on everyone else and not realizing it until after I look like the bad person, hopefully they understand. I have to call my GI to talk to her. It is weird though because on Monday when i was there for a checkup everything seemed fine and literally the next day i noticed pain starting to creep it. And Hope345 what exactly is Kefir?

 

[Hope345]

Melissa,

Of course you are not going to be happy, and your family will understand. You have so much going through your mind and are scared and mad it is coming back. If your mom knows, she is going to feel the same way. Let her know, if you havent already. Believe me, she is scared and sad for you too.

Kefir is a grain that grows its own good bacteria that is good for our gut. You can buy some at the local healthfood store already made up (refrigerated). It is a good way to start..
But we are eventually going to buy the grains and make our own. It can give your digestive system even more good bacteria that will hopefully balance it out.

I know it is a helpless feeling. the reason I am so excited about the kefir, is because it has given me hope that one day, this will all go away. I have talked with many people who have added the kefir to their routine, along with the other meds at first, and then were able to eventually get off of everything but the probiotics (kefir).

I dont want to be unrealistic, but it all seems to fit together. I am in the research mode and looking at what is the reason my daughter has this. I have a nephew who has it too. His symptoms are the same as my daughters, so I do believe people can have the inability to fight off bacteria properly. I also believe all the meds have been necessary, but we are now able to go to the next step to bring her into remission.