It's always one thing after another...

[AliGilbreath]

Anyone else feel like having Crohn's is a constant battle of one sickness after another?

I can't remember the last time I have had a normal month with no sickness or problems.

Last week I had a fever and chills and just didn't feel well. A couple days later I had an abscess on my bottom, and had it lanced and they put me on antibiotics. I knew right away that was going to turn out badly. Now here I am testing positive for C Diff. Flagyl for 10 days 3x a day.

To top everything off, I don't get my remicade infusion this friday because of the C Diff and antibiotics. Oh and not to mention Flagyl makes me extremely sick, so this week should be fun.

All I want is some down time, feeling good and enjoying my life with my kids and family. Crohn's is so unfair. I feel like I have been robbed of the best years of my life.

 

[Tuff]

I'm sorry you're having a hard time. Crohn's is like a roller coaster. Even in remission, problems crop up. I'm currently struggling with mouth issues. Try to take really good care of yourself, and enjoy those days you're feeling good. :ghug:

 

[ronroush7]

Hope you feel better soon.

 

[Pug Gamer]

I know how you feel, you just want a break. Just to rest and get abit of peace to build yourself up for the next flare etc. I have alot of illnesses so never have "normal" days. So i know what you're going through, hope it settles so you can get a decent problem free time.

 

[Cat-a-Tonic]

I absolutely understand. It's a never-ending series of battles and there's apparently no such thing as just being able to feel well and enjoy it and not have any issues. I've been dealing with a flare that started back in July. The flare is under somewhat better control now, but I cannot seem to get off of prednisone and I get flare symptoms whenever I taper too low for my body's liking. And the pred has given me other issues, like my GERD has been much more active lately thanks to the pred so I'm dealing with that fun as well. Plus I've been really depressed lately, not sure if that's thanks to the flare or the pred or both. And just when I thought I had my doctor bills under control, we did our taxes, and now we owe the IRS a bunch of money, so I just can never get ahead health-wise nor financially it seems. So I have to work full-time just to try to stay on top of the bills which is exhausting because of my flare and it's all just never-ending. It's exhausting just to keep putting one foot in front of the other some days. I definitely feel for you and know what it's like. I don't have any answers for you, but you're not alone.

 

[cmack]

Hi AliGilbreath,


I understand how you feel as if you have been robbed of the best years of your life. I had the same kinds of feelings and sometimes I still occasionally do. I personally got sick when I was 27 and am now 38. I am now disabled, however I am still far more able than I am disable.

I try to tell myself to focus on the present, not dwell on the lost days as they are gone forever. No matter how much we choose to smile, cry, laugh or feel hurt, the days pass us by either way. For me it helped to choose to try to look at the small joys each day a little more and just take life as it comes. It helped me to think this way, I know it is hard. I have been there too. Take good care of yourself. Who knows right, maybe the best days are yet to come? I hope they are.


All my best wishes for you and your family,

cmack