I always inspect my bm after I go, because i've been making white mucus and found it was all orangey/red. I asked mum is she had any fancy red coloured bleach for the toilet or put anything red there. No one else uses that particular toilet except for me. I'm not on my period at the moment and it was clean before I used it. Our toilet paper is white. Blood from my bottom is the only explanation and my tummy hurts so much and I feel so bad right now. I don't really know what the purpose of this post is to be honest. I'm seeing my doctor in a few days and going to see my specialist soon hopefully. I just need some reassurance. Nothing is stopping the pain. I've tried everything - hot water bottles and that kind of pain relief. I can't take the pain killers they've put me on because it's ibuprofen! I'm kind of scared at the moment because i'm 16 and i'm supposed to be going to parties and things this week if I was healthy, but instead i'm bleeding from my bum. That's totally not cool. I need help for this pain and i'm not getting it and I know what I need to do - change doctors until I find someone but what do I do in the mean time? How do I cope whilst being told it's in my head. I don't know what to do anymore and i'm on the verge of tears (i've toughened up since being ill, so don't cry much anymore - no point.) It's getting too much and I don't know what to do and i'm scared and this is frustrating. I know we have all been or going through this together, and that's half good but half bad. I know I shouldn't moan about this but I am. I don't know what to do. I've been doing everything you've all been telling me and i'm trying so hard to get better and i've been going for walks and gone back to college and doing coursework, i've been chilling, sleeping, listening to my body. I'm doing everything I can and it's not good enough and i'm really scared and I need help and i'm getting worse all the time and it's terrifying and I really need a hug.
I've had enough :(
- Thread starter tlc-x
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Tasha,
I don't think I can say anything that will make it better but I want to say I know how you must feel and you're not alone. It's scary enough being sick but suspecting that there's blood there must be scary and make things more real.make sure you let the dr know how tough things haves been, ur so young! You say there's a history in your family so mayb they'll understand if you share your frustrations?
Hug xx
I don't think I can say anything that will make it better but I want to say I know how you must feel and you're not alone. It's scary enough being sick but suspecting that there's blood there must be scary and make things more real.make sure you let the dr know how tough things haves been, ur so young! You say there's a history in your family so mayb they'll understand if you share your frustrations?
Hug xx
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First off, :ghug: Honestly, and it's gross, but if I were you I'd start taking pictures (on a phone, small digital camera, whatever you have) and taking them to your dr so they can see it's not all in your head. As the saying goes, a picture is worth a thousand words. It's much harder for them to see what you're seeing and dismiss it. Not knowing what's wrong is the worst feeling. I was there for years. I hope you get some real answers soon and can start on the road to feeling better.
Astra
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Tash
If you were my daughter I'd get a loan and go private, average price £1000-1500
I just couldn't sit back and watch my child bleed from her bum after a doc said it was nothing? Something is wrong and it can't be ignored any longer.
Seriously, I'd be phoning an ambulance if this was Jess or Jordan
Honestly, it's just killing me reading these posts from you, and I believe we've all done our utmost to help you, and you've done everything in your power too.
START SCREAMING FOR HELP!
All I can do is send virtual hugs your way
xxx
If you were my daughter I'd get a loan and go private, average price £1000-1500
I just couldn't sit back and watch my child bleed from her bum after a doc said it was nothing? Something is wrong and it can't be ignored any longer.
Seriously, I'd be phoning an ambulance if this was Jess or Jordan
Honestly, it's just killing me reading these posts from you, and I believe we've all done our utmost to help you, and you've done everything in your power too.
START SCREAMING FOR HELP!
All I can do is send virtual hugs your way
xxx
I'd take my child to hospital and demand help. I'd do everything and anything to fight for the child. I'd handcuff myself to a seat in the doctors office and swallow the key. I wouldn't stop fighting for my child. I'm trying so hard to fight for myself and I do take pictures of things. I have told my parents what I want to happen and how and what will work but I need their support in doing it. I am trying so hard to fight but whatever I do is not enough for anyone.
(phone restricts how much I can put in a message.) I listen to this site and I KNOW if people listened to me and did everything I asked, then we could get this done and quickly. I know what tests I want and need and how I want them done. We're under time pressure here because every year near the end I get worse. It's like a bump up, every year I bump up a level of how bad I am. I'm terrified for the next 'level up'.
Astra
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You're doing just great Tasha, don't beat yourself up
stay strong and stay away from ibuprofen
Co codamol might be a better painkiller. If you were in hospital they would give you 30mg Codeine, the OTC stuff is only 8mg but it's better than an NSAID
xxxx
stay strong and stay away from ibuprofen
Co codamol might be a better painkiller. If you were in hospital they would give you 30mg Codeine, the OTC stuff is only 8mg but it's better than an NSAID
xxxx
Yay three month wait for next GI appt. grrr. Lets ignore the mucus, blood, pain, nausea and everything else for three months and all should be good. Stupid doctor. Then at the appointment we get to talk about how i'm going to "manage my symptoms." Yes, how ARE we going to manage this? My brother said not to poo (lol i love my brother). Hate that doctor.
Without meaning to be rude and unsympathetic, if your family are not stepping up and helping you then it's going to be down to you to demand these things from the Drs, and ignore any family critisism, sarky comments etc.
You're going to be 17 soon so more than old enough to stand on your own two feet.
I know exactly how hard that is when you're sick, ideally everyone around you would be a mind reader and do everything you needed for you.
But if you're not getting outside help you will need to do it for yourself, however hard that is.
As Astra said, Codeine 8mg is available in Boots, I *think* you are old enough to buy it yourself, no need for a prescription. Knowing you Mum reacted badly only means you need to be cautious is your use until you see how it suits you. My Mum gets knocked out for hours just from ibuprofen, whereas I have always had a high tolerance to pain meds.
Did your specialist clarify why you shouldn't take it? If you disagree with the reason use your judgement to decide whether or not you should try.
I am sorry about your long wait for your next visit. Sadly that is part of the NHS these days and it's only going to get worse in the future. Keep a diary of all your symptoms, along with pictures of the toilet bowl when you see blood, and take it with you when you go. Go to A&E or a walk-in clinic when things get too bad. If there is no-one to take you then save some of your money for an emergency taxi fund.
Without wishing to scare you i've been playing the NHS wait game for 5 1/2 years now and I am still undiagnosed. And quite a bit sicker and in more pain then when I started. It's frustrating but when it's the only option you just have to go with it. I do all I can to get seen sooner and if it doesn't work I don't waste my energy stressing on something I have done everything to acheive and can't do any more for. Of course I get upset about it. I find allowing the upset to dominate for a few days when it gets too much to ignore, helps me to pick myself up after and carry on.
I hate going to all my Hospital appointments alone and not having a car or anyone to take me to get there. Sometimes I even have to get the bus when I am too ill really as I have no taxi money left for that appointment (this happens from time to time despite my budgeting efforts, I am improving at that though!). But there isn't an option so I have to do things the hard way. It's surprising what you are capable of and how well you can manage when you've no other choice. Instead of dwelling on how hard things are, I focus my energy on doing what needs to be done, whether that is easy or hard.
You don't like your specialist so how about changing to someone else? This can be requested. If there is no-one else at your Hospital then look into getting a referral to a different Hospital. This is also easily managed via your GP.
You're going to be 17 soon so more than old enough to stand on your own two feet.
I know exactly how hard that is when you're sick, ideally everyone around you would be a mind reader and do everything you needed for you.
But if you're not getting outside help you will need to do it for yourself, however hard that is.
As Astra said, Codeine 8mg is available in Boots, I *think* you are old enough to buy it yourself, no need for a prescription. Knowing you Mum reacted badly only means you need to be cautious is your use until you see how it suits you. My Mum gets knocked out for hours just from ibuprofen, whereas I have always had a high tolerance to pain meds.
Did your specialist clarify why you shouldn't take it? If you disagree with the reason use your judgement to decide whether or not you should try.
I am sorry about your long wait for your next visit. Sadly that is part of the NHS these days and it's only going to get worse in the future. Keep a diary of all your symptoms, along with pictures of the toilet bowl when you see blood, and take it with you when you go. Go to A&E or a walk-in clinic when things get too bad. If there is no-one to take you then save some of your money for an emergency taxi fund.
Without wishing to scare you i've been playing the NHS wait game for 5 1/2 years now and I am still undiagnosed. And quite a bit sicker and in more pain then when I started. It's frustrating but when it's the only option you just have to go with it. I do all I can to get seen sooner and if it doesn't work I don't waste my energy stressing on something I have done everything to acheive and can't do any more for. Of course I get upset about it. I find allowing the upset to dominate for a few days when it gets too much to ignore, helps me to pick myself up after and carry on.
I hate going to all my Hospital appointments alone and not having a car or anyone to take me to get there. Sometimes I even have to get the bus when I am too ill really as I have no taxi money left for that appointment (this happens from time to time despite my budgeting efforts, I am improving at that though!). But there isn't an option so I have to do things the hard way. It's surprising what you are capable of and how well you can manage when you've no other choice. Instead of dwelling on how hard things are, I focus my energy on doing what needs to be done, whether that is easy or hard.
You don't like your specialist so how about changing to someone else? This can be requested. If there is no-one else at your Hospital then look into getting a referral to a different Hospital. This is also easily managed via your GP.
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I would drag you to GP and demand or A and E would next on my list. Forget the GP. If you start Vomit I really recommend you go the Hospital straight away.
And your mum should of done something by now, yes you sixteen.
And your mum should of done something by now, yes you sixteen.
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Hi I understand that this thread was posted in 2012 but when I read it I had to reply. I have had Crohn's for Almost 19 years and have ALWAYS been told DO NOT TAKE IBUPROFEN as it is DANGEROUS for people with IBD as it can cause ulcers etc in anyone but in people with IBD as we already have inflammation and ulceration IBUPROFEN SHOULD NOT BE TAKEN UNDER ANY CIRCUMSTANCE. I have Crohn's related Arthritis and one of the meds they tend to give you for Arthritis is IBUPROFEN but due to me having Crohn's even my Ruematologist knew I Could NOT and SHOULD NOT be perscribed them PLEASE PLEASE DO NOT TAKE THESE IF YOU HAVE IBD . Codedine does tend to be perscribed , I myself take this 60mg 4 times per day , though I was perscribed codedine along with other meds to try and control my Diarrhoea rather than for pain , I am on Fentanyl patches for pain and oral morphine for breakthrough pain ( I have very severe aggressive form of CD) , your Mum may have had what she believes to be a bad reaction to Codedine (it was more than likely that she suffered from the side effects of codedine rather than a reaction as the side effects are tiredness, dry mouth, dizzyness, itching, nausea and or vomiting, headaches to name a few ) this does not mean that you will have a reaction. I do hope you got the help that you needed and that you are feeling much better now , hugs to you
Loulou xx:ghug:
Loulou xx:ghug:
I hadn't read this before now. Can anyone tell us how she is doing now?
Can't believe how caught up I get in stories like this, but I was concerned.
Can't believe how caught up I get in stories like this, but I was concerned.
