- Joined
- Jul 31, 2015
- Messages
- 1
Hello! I'm new to this site so bear with me...
I had a total colectomy and end ileostomy surgery on the 9th of July. The plan is to get completely off of prednisone (I'm on 10 MG now but have had a terrible time in the past coming off the steroids so I'm HOPING it works out well this time around...) then in a few months have the surgery for the j pouch, but I have a few concerns. First of all, could anyone tell me exactly what the j pouch is, how it works, and what I should expect during/after the surgery? Also, what exactly is pouchitis and what are my risks of getting it?
I'm also scared that if I do go through with this I'll go back to square one- urgent, frequent stools multiple times a day/night. I don't want that. In fact, I'm terrified of that. Especially the urgency.
Has anyone had similar worries? Can you tell me how your life was/is after having the j pouch as well?
I've heard that 95% of patients benefit from the surgery but there are many who go through a living hell, if not right after, years later. I certainly do not want that. Yes, the ostomy/bag is a real pain and I'm not wanting to live with it for the rest of my life but I would much rather have to put up with it than regret getting the j pouch...
And would it be a bad idea if I ended up getting the j pouch, then switching back to an ileostomy in the future?
Thanks
I had a total colectomy and end ileostomy surgery on the 9th of July. The plan is to get completely off of prednisone (I'm on 10 MG now but have had a terrible time in the past coming off the steroids so I'm HOPING it works out well this time around...) then in a few months have the surgery for the j pouch, but I have a few concerns. First of all, could anyone tell me exactly what the j pouch is, how it works, and what I should expect during/after the surgery? Also, what exactly is pouchitis and what are my risks of getting it?
I'm also scared that if I do go through with this I'll go back to square one- urgent, frequent stools multiple times a day/night. I don't want that. In fact, I'm terrified of that. Especially the urgency.
Has anyone had similar worries? Can you tell me how your life was/is after having the j pouch as well?
I've heard that 95% of patients benefit from the surgery but there are many who go through a living hell, if not right after, years later. I certainly do not want that. Yes, the ostomy/bag is a real pain and I'm not wanting to live with it for the rest of my life but I would much rather have to put up with it than regret getting the j pouch...
And would it be a bad idea if I ended up getting the j pouch, then switching back to an ileostomy in the future?
Thanks
