I was diagnosed while living in japan with crohns disease 4 years ago. i was in hospital for 5 week and didnt improve much. since then, pain was bad, and 9 months ago it became unbearable, beyond belief, like someone had a blowtorch against my intestine numerous times a day.
The doctors in japan really destroyed me, they tried me on numerous different drugs, didnt bother with CT scans or colonoscopies, and gave me intravenous pain medication once a week which was only helpful for a few hours after i got it.
i had bad blood, high white cell count. low red blood cell count, low iron, anaemia, and the japanese doctors did nothing about it.
then i came to Australia in march, went to see a gastroentorologist (details can be given if you want), two weeks in hospital to stabilise my blood and im 1000 times better now. the pain is still bad, but diarrhoea is better, almost like a normal person now.
i find endone is good to have, one just before each meal seems to do the job. i know its a narcotic based pain killer, but im smart enough to know the difference between need and addiction.
the pain is still bad, but ive worked out i can eat most meats (i never eat pork), carrots, peas, white bread, coco pops and rice bubbles, plain yoghurt (no nuts inside), a little fruit, fruit cups, cheese is ok, and i want to increase my knowledge of whats OK for me.
i wont be working for the next 18 months, ive decided to get regular treatment while going back to university. im going to beat the crap out of this disease, because i cant live with it.
The doctors in japan really destroyed me, they tried me on numerous different drugs, didnt bother with CT scans or colonoscopies, and gave me intravenous pain medication once a week which was only helpful for a few hours after i got it.
i had bad blood, high white cell count. low red blood cell count, low iron, anaemia, and the japanese doctors did nothing about it.
then i came to Australia in march, went to see a gastroentorologist (details can be given if you want), two weeks in hospital to stabilise my blood and im 1000 times better now. the pain is still bad, but diarrhoea is better, almost like a normal person now.
i find endone is good to have, one just before each meal seems to do the job. i know its a narcotic based pain killer, but im smart enough to know the difference between need and addiction.
the pain is still bad, but ive worked out i can eat most meats (i never eat pork), carrots, peas, white bread, coco pops and rice bubbles, plain yoghurt (no nuts inside), a little fruit, fruit cups, cheese is ok, and i want to increase my knowledge of whats OK for me.
i wont be working for the next 18 months, ive decided to get regular treatment while going back to university. im going to beat the crap out of this disease, because i cant live with it.
