Joint Pain!

[meg091]

Hi everyone, I'm new to this site but looking to see if anyone else suffers like I do.

I was diagnosed with Crohns when I was 13 I'm now 21. I am currently on meazalazine and azathiprine (don't think I spelt medication names correct) and get infusions of inflixmab every 8 weeks. Does anyone else on here have these infusions? so my main problem lately is joint pain. Pain and swelling in my knees, ankles, elbows and fingers to the point that I just cry as panadol doesn't do anything. I have spoken to my doctor about this and she said there is nothing else they can do as I'm on medication that should be helping this... clearly not! I have told her I can not put up with the pain anymore. I have put on 8 kilos as I can not exercise, at work I struggle as I'm in constant pain and not to mention just everyday living and how hard it is. Does anyone else have this problem with their crohns an if so what do you do?? I'm desperate to hear if anyone else has this problem and what they do to help themself? I'm 21 how can I live the rest of my life like this??

 

[KayleighMeek]

Hello and welcome to the forum but sorry to hear you are suffering so badly. I suffer badly from joint pain and swelling whilst flaring and I have been diagnosed with enteropathic arthritis and is a quite common extra intestinal manifestation. I would see if you can get refered to a rheumatologist it is not right you have to deal with this and your GI telling you just deal with it is completely wrong. Another thing people have experienced on this forum is a reaction to infliximab/remicade where it causes joint pain and the only way they have found relief is to come off the medication.
Whatever is going on it needs to be looked at so you can get some relief.

 

[meg091]

Thanks for your feed back kayleighmeek !

I've got an appointment wig my doctor in 3 weeks so will ask for a referral. My joint pain goes as soon as I have my infusion it's normally the 2 weeks before my infusion that is unbearable. My doctor thought it may be a reaction to the infusion but looked into it and said if it was it would happen after my infusion by before I was due. Once my infusion is over I walk out of the hospital as a new person pretty much and all will be good until the 6 week mark and then everything goes down hill fast and the joint pain becomes more the ridiculous. I've asked to have my infusions more regular but due to Medicare Australia paying for it they won't allow it. It's very strange and no one seems to be able to help me.

Thank you so much for your feed back. This forum is great!!