Hey, I have been posting on here for a few weeks about my frustrations of not getting a diagnosis. At this point, I have lost about 60 pounds. I just got out of the hospital after 5 days. It was the second ER visit in a month. I was in the ER this time and they were about ready to send me home. I asked the doctor if he would mind taking my temperature. Luckely, I had a low grade fever and he did not want to send me home because I had the colonoscopy the day before. Interesting enough, both of the ER visits I had coincided with 1. Endiscopy 2. Colonoscopy. The medicine made me feel good and I ate, which was bad because I was obstructed.
Anyway, I got admitted in the hospital and they started saying stuff like I might have a rare disorder or disease. The doctor on staff said I might need to find a specialist in Seattle if my doctor could not find out what was wrong with me. I was so sad and in so much pain. I refused to take their pain medication because I did not want to be labeled a drug seeker. I thought that they would never figure out what was wrong with me. My doctor ordered an MRI of my small bowel because that was the only test that I had not had. My endoscopy and colonoscopy did not show anything abnormal, which made me sad because the CT scan of my small bowel did show some narrowing and "cobblestoning."
My MRI was definitely abnormal and my doctor diagnosed me with Chron's. Its in my small bowel by the terminal illium. They also did some tests which showed a lot of inflammation in my blood, which was funny because I asked my doctor to look at that in a blood test a week earlier and he said it was normal. I guess that is what you get when you ask your primary instead of your gastro doctor.
I'm taking Prednisone and I'm feeling better! I just want to tell people not to give up. I have been discouraged so many times. My first gastro doctor refused to do any more tests after the Endiscopy. I was scared that I had something wrong with my mind. Doctors minimize pretty much minimized everything to the point that I thought I was crazy. If you are in pain please don't give up. If I could have walked out of the ER this last time, I would have. The only reason I stayed was because my girlfriend told me to. If I had left, I would still be waiting for a diagnosis and not on the path to hopefully a remission.
I have so much to learn. I'm just glad that I know what I'm fighting against now. Question: is it ok to take Prednisone for a month? Is there anything I should be worried about. I can't thank you guys enough for the support and kindness that I have recieved here. :ghug:
Anyway, I got admitted in the hospital and they started saying stuff like I might have a rare disorder or disease. The doctor on staff said I might need to find a specialist in Seattle if my doctor could not find out what was wrong with me. I was so sad and in so much pain. I refused to take their pain medication because I did not want to be labeled a drug seeker. I thought that they would never figure out what was wrong with me. My doctor ordered an MRI of my small bowel because that was the only test that I had not had. My endoscopy and colonoscopy did not show anything abnormal, which made me sad because the CT scan of my small bowel did show some narrowing and "cobblestoning."
My MRI was definitely abnormal and my doctor diagnosed me with Chron's. Its in my small bowel by the terminal illium. They also did some tests which showed a lot of inflammation in my blood, which was funny because I asked my doctor to look at that in a blood test a week earlier and he said it was normal. I guess that is what you get when you ask your primary instead of your gastro doctor.
I'm taking Prednisone and I'm feeling better! I just want to tell people not to give up. I have been discouraged so many times. My first gastro doctor refused to do any more tests after the Endiscopy. I was scared that I had something wrong with my mind. Doctors minimize pretty much minimized everything to the point that I thought I was crazy. If you are in pain please don't give up. If I could have walked out of the ER this last time, I would have. The only reason I stayed was because my girlfriend told me to. If I had left, I would still be waiting for a diagnosis and not on the path to hopefully a remission.
I have so much to learn. I'm just glad that I know what I'm fighting against now. Question: is it ok to take Prednisone for a month? Is there anything I should be worried about. I can't thank you guys enough for the support and kindness that I have recieved here. :ghug:
Now continue to educate the heck out of yourself regarding this disease so you can be your own best advocate as Dunbar mentioned. We're here to help you with that and support you along the way.
