Just got results from pathology . . . .
- Thread starter buchanaj
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CarolinAlaska
Holding It Together
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Welcome, I'm sad to say... Push for more than Pentasa! That hasn't shown to provide lasting remission... If the doc doesn't go for an immunologic or TNF blocker, you may want a second opinion...
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Sending hugs! I'm sure he will talk more about meds when you see him. Generally most docs with start with either an immunomodulator or a biologic, like Carol said.
Pentasa is a very mild drug that has not been proven to work for Crohn's. Some doctors say that it is like giving aspirin for a brain tumor - won't hurt but won't help.
Pentasa is a very mild drug that has not been proven to work for Crohn's. Some doctors say that it is like giving aspirin for a brain tumor - won't hurt but won't help.
crohnsinct
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Well for him to even utter the word Pentasa it is a little encouraging. Disease must be mild and may be isolated to the colon as Pentasa has a better success rate with colonic only involvement.
It she has disease anywhere else, I would be asking for him to justify Pentasa and give you a clear plan of how long you are going to give it to work (after the steroids are stopped) and what the exit plan will be.
Mild disease doesn't always respond to mild drugs...ask me how I know. So while I agree to go ahead and try mild drugs on mild disease, it is good to define what success should look like, what he will be using to measure success and when you should abandon therapy.
It she has disease anywhere else, I would be asking for him to justify Pentasa and give you a clear plan of how long you are going to give it to work (after the steroids are stopped) and what the exit plan will be.
Mild disease doesn't always respond to mild drugs...ask me how I know. So while I agree to go ahead and try mild drugs on mild disease, it is good to define what success should look like, what he will be using to measure success and when you should abandon therapy.
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Pentasa is not approved as a monotherapy for crohns for a reason
Sorry for the diagnosis, but like you said, it's good to know so you can work toward remission. Ours is another GI that said no to Pentasa when I asked. Maybe helpful for disease in large intestine, but I would definitely ask more questions.
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Great attitude. This is a huge step towards getting her and your life back. Celebrate that.
I hope your appointment goes well.
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Glad to hear you are getting some answers. Hope the appt goes well and the doctor puts a good plan together. I agree with the others that if the docs only plan is pentasa then you may want a second opinion. Will be waiting to hear how it goes.
