Just letting you all know.

[Hayleymariex]

Hey everyone, just a little update on what's been happening with Joe since he woke up from the coma (damn doctors.)
Finally, after a grand total of 8 weeks in the hospital Joe was released permanently! He has had visits from the stoma nurse every other day (Mondays, Wednesdays, and Fridays) but they've stopped for a few weeks, and he's now having weekly visits from the district nurse. Mona the Stoma is settling nicely, but she's an opinionated little bugger, only seems to gurgle when I'm talking, rude. In the first few weeks of his being at home though, Joe had a bad old time. Small leaks we expected, and we all prepared. However, we did not prepare, for a full on bag explosion. Poo everywhere. Tears from everyone. But we were fine and it was thankfully a one off.
I'm now in training for changing his bags while his mams on a weekend break with her friends, because Joe's currently a little sore, and it's hard for him to clean Mona properly.

Has anyone had the same problems with leaks and things? How did you solve them? xx

P.S. We got his DLA back last week, on the highest platform. Now it's just suing his pediatrics consultant and filing complaints against the doctor who tried to send him home with severe sepsis. Darn doctors :voodoo:

 

[Earnellzwifey]

I am glad that things are getting better!!!! I do not know about stomas so I hope others reply with some good tips.

 

[2thFairy]

Mona the Stoma has to learn that you are the first woman in his life and she is the second... I tell you, a backtalking stoma has to learn its place! Hahaha! My stoma, Bob, gets loud whenever my husband talks. They are quirky buggers for sure!

So glad that things are on the up turn for Joe. Sounds like all 3 of you are a strong bunch. Keep us updated.

 

[glum chump]

I had major blowouts too when I first came home. Part of the problem, for me, was that I ate higher residue foods rather than staying on a low residue diet for a while before 'upgrading' my food list. Also, I'm not sure how often he changes his appliance, but you might want to do it every few days to prevent a blowout. I'm sure the nurse has spoken about seals around the flange, but you might want to also consider what sorts of seals you're using for extra security against leaks.

And in the beginning, my stoma complained and hollered something awful. It's settled in nicely now that we have an 'understanding'! Mind you, occasionally, it still has a mind of its own...

Stay well and good luck with the appliance change training!

Kismet

 

[ameslouise]

Perhaps your stoma nurse can give you samples of different kinds of bags to try to help with the blowouts. I switched to convex and have had only a leak or two in the last year and a half, but no blow outs. Also, try using an ostomy belt for additional security.

Good luck! - Amy

 

[Jaano711]

Im only a newbie. Only had minor issues so far due to basil fawlty the stoma nurse.

I use a convex bag and a full seal and for extra piece of mind I have the funky boomerang shaped adhesives to go over the base plate for added security. Get the stoma nurse to offer up all options to help against leaks. I suppose also you should watch out for his bag ballooning and burp or empty it when this occurs. Good luck. Very glad to hear you are all on the mend. Mona sounds like a pushy little maddam. My miss piggy only starts chatting when friends come over. I am starting to work my way through the embarrassment. Hopefully when miss piggy gets a bit older she may get better manners.

Lower us updated.
Janette xx