- Joined
- Jun 14, 2011
- Messages
- 6,517
S has been having symptoms that have him a bit concerned... they're not severe but have been persistent for a month or two so it's beginning to worry him.
...he's been having pain in the upper right quadrant fairly consistently... maybe not every day but most days. (In the past, his inflammation was primarily TI/small bowel although I do think he had a few small patches in his colon at dx.)
...constipation
...canker sores this past week
...restless leg syndrome, which he says the last time he felt that was just prior to being diagnosed. His HGB was low at dx and low HGB can cause RLS.
...falling asleep after work (prior to dx, he was falling asleep after school).
...and his eyes are getting that crusty sensation again... which is probably unrelated, however, it was one of the symptoms he had in the summer when he was 'sort of' diagnosed with adenovirus (we never did get confirmation).
However, he hasn't lost any weight and says his appetite is good/same. No fever, no nausea. And I don't think he looks pale. All these were symptoms prior to dx.
He has his next remi on Saturday and, luckily, his next GI follow-up Mar 30. If nothing changes (and, nothing significant shows on labwork), then we'll wait until his scheduled apptmt. (Everytime I plan on S going to see his GI on his own 'from now on', something comes up!
)
And, just to keep things really interesting... my daughter was diagnosed with VAD about a month ago (vertebral artery dissection). Like THAT doesn't have me stressed enough!!
One night she woke up with loud ringing in her ears and wanted to go to ER. I wasn't concerned and told her to go back to sleep and book apptmt with her GP in the morning. Her GP didn't do anything, said to give it some time, that as it was right after xmas, she'd been off her usually strict diet and may have thrown off her electrolytes. After two or three weeks, she still wanted to go to ER because she said she couldn't stand the noise at night (during the day, there's enough other white noise that it wasn't so bothersome).
Over the course of a few days, two ER visits, a CT and MRA, they found that her vertebral artery had dissected. BUT they don't think it has anything to do with the ringing in her ears! Just coincidence! From my perspective, very lucky coincidence... from hers, she's very annoyed that she went in for one thing and came out with a second problem!
For now, she's only taking a baby aspirin every day and has another MRA on April 30, when it will hopefully show that it's healed on it's own.
She's really frustrated because one of the things the neuro told her to avoid is lifting any weight... for those of you who know me and remember me talking about her, she does fitness competitions, so the exercise limitation is not sitting well with her! Thankfully, her real prep/training doesn't start until summer - otherwise, this would have been an even bigger battle! It's also meant that we've had to postpone a trip the two of us had been planning... Maybe I'm being paranoid but I'm too worried to travel out of the country until we know this is healed. It's hard because, from what I've read, aspirin is a typical treatment and it can heal itself in 3-6 months. So it's really just a wait and see.
As for the ringing, we saw the ENT and he couldn't find any reason for it... especially as she'd had a CT and MRA (which usually wouldn't be done for tinnitus). He said it sometimes just happens and sometimes just goes away. She thinks it's getting a bit better??
So, ugh, I am really looking forward to this spring coming quickly!! So I can be told that both are 'good to go'!!
...he's been having pain in the upper right quadrant fairly consistently... maybe not every day but most days. (In the past, his inflammation was primarily TI/small bowel although I do think he had a few small patches in his colon at dx.)
...constipation
...canker sores this past week
...restless leg syndrome, which he says the last time he felt that was just prior to being diagnosed. His HGB was low at dx and low HGB can cause RLS.
...falling asleep after work (prior to dx, he was falling asleep after school).
...and his eyes are getting that crusty sensation again... which is probably unrelated, however, it was one of the symptoms he had in the summer when he was 'sort of' diagnosed with adenovirus (we never did get confirmation).
However, he hasn't lost any weight and says his appetite is good/same. No fever, no nausea. And I don't think he looks pale. All these were symptoms prior to dx.
He has his next remi on Saturday and, luckily, his next GI follow-up Mar 30. If nothing changes (and, nothing significant shows on labwork), then we'll wait until his scheduled apptmt. (Everytime I plan on S going to see his GI on his own 'from now on', something comes up!
)And, just to keep things really interesting... my daughter was diagnosed with VAD about a month ago (vertebral artery dissection). Like THAT doesn't have me stressed enough!!
One night she woke up with loud ringing in her ears and wanted to go to ER. I wasn't concerned and told her to go back to sleep and book apptmt with her GP in the morning. Her GP didn't do anything, said to give it some time, that as it was right after xmas, she'd been off her usually strict diet and may have thrown off her electrolytes. After two or three weeks, she still wanted to go to ER because she said she couldn't stand the noise at night (during the day, there's enough other white noise that it wasn't so bothersome).
Over the course of a few days, two ER visits, a CT and MRA, they found that her vertebral artery had dissected. BUT they don't think it has anything to do with the ringing in her ears! Just coincidence! From my perspective, very lucky coincidence... from hers, she's very annoyed that she went in for one thing and came out with a second problem!
For now, she's only taking a baby aspirin every day and has another MRA on April 30, when it will hopefully show that it's healed on it's own.
She's really frustrated because one of the things the neuro told her to avoid is lifting any weight... for those of you who know me and remember me talking about her, she does fitness competitions, so the exercise limitation is not sitting well with her! Thankfully, her real prep/training doesn't start until summer - otherwise, this would have been an even bigger battle! It's also meant that we've had to postpone a trip the two of us had been planning... Maybe I'm being paranoid but I'm too worried to travel out of the country until we know this is healed. It's hard because, from what I've read, aspirin is a typical treatment and it can heal itself in 3-6 months. So it's really just a wait and see. As for the ringing, we saw the ENT and he couldn't find any reason for it... especially as she'd had a CT and MRA (which usually wouldn't be done for tinnitus). He said it sometimes just happens and sometimes just goes away. She thinks it's getting a bit better??
So, ugh, I am really looking forward to this spring coming quickly!! So I can be told that both are 'good to go'!!
)
I'm glad his next apptmt is already scheduled!
