Kefir? Probiotics? On remicade.

[xmdmom]

Can people with Crohns who take Remicade drink kefir or take probiotics? My LO would like to increase biodiversity of their microbiome (for another illness).

I am wondering if Kefir and probiotics are ok because of the immunosuppression and possible effects on Crohns. LO has small intestine Crohns and is thought to be in remission by calprotectin, symptoms, ultrasound. Thanks!

 

[my little penguin]

My kiddo took prescription strength probiotics on humira and still takes them on Stelara.
He takes 900 billon -visobiome (original formula from vsl #3) owners changed hands etc…
It’s basically two packets otc .
For him it helps a lot with his sigmoid /rectum .
So 12 years of probiotics and biologics

Good luck

 

[Crohn2357]

possible effects on Crohns

These can be highly immunogenic and risky. I would not take them. I think probiotics are a great way to make money. Nobody understands or knows much about microbiome currently to confidently mess with it. In addition, kefir has casein and lactic acid; both of these can increase the risk of a Crohn’s flare-up. If Crohn’s is in remission, is it worth risking it?

 

[Crohn2357]

There are also possible theoretical risks associated with being immunosuppressed by the drugs used for CD and by the pathophysiology of CD itself.

 

[Crohn2357]

Regarding increasing biodiversity:

What does biodiversity mean?
What do people know about whether increasing biodiversity is beneficial (and in what respects); whether these can increase biodiversity (if so, how) reliably and in a long term even after one stops taking them; and whether they can do so every time when they are taken; whether it is safe to achieve that state (and for whom); whether it is beneficial to achieve that state for CD patients; whether it is safe to take them for CD patients; how do these probiotics behave in different conditions and what the implications of that may be; whether increasing the number of microorganisms living in your gut is beneficial or safe for CD… so on one can ask many other questions. I cut it short.

 

[Crohn2357]

Since editing function is not working:

Do healthy mammals living on land get better or worse if their biodiversity and the number of microorganisms on their digestive system are increased; or is it a sign of lost health if they have higher than average (for their species) number and diversity of microorganisms on their gut?